Good luck Clark. hope it works this time.

i have been transferred to henry ford hospital in detroit for eval of possible cervical myelopathy by a neurosurgeon. and a more thorough investigation of my ms. my neuro here in michigan has not been able to get my az records from st Josephs, not sure why but i plan to call them today. the steroids have helped, but i have not continued them so far at the new hospital...

Thank you Clark.

Regarding IVSM, I find that they help me while I am getting them. In fact, I am Wonder Woman while I am on them. Then I crash and have every symptom I started with after they stop.

Gradually then, things get better over weeks- like 6 weeks.

I am unclear whether you are on Medicare or Medicaid or if you are dual.

I hope you get better housing (if you have any option- ask for air-conditioning).

Sorry I was so late to your thread. Be well.
ANN

Good Lord Clark...prayers and hugs as you travel this challenging road...know that we're pulling for you.
Don't forget to use all available resources at the hospital, especially patient advocate. You need to keep on top of how many days you're allowed in hospital, etc., and also to keep you up to date on all that's going on.

well it has been an up and down battle. i was released from henry ford hospital around june 4th back to the nursing home/rehab center. i had been referred there after my mri of my neck showed possible disc slippage pressing on my spinal cord and my neuro wanted me evaluated for surgery. new mri's showed the discs were not impinging on the spinal cord, the ms had caused lesion there, as i suspected. i got 4 days or so of ivsm followed by oral steroids. i was able to make arrangements to move out of my apt thanks to my sister and her husband, who cleared it out for me.
my niece told me my dad had had an "incident" when he realized my car was at my sisters. he had known i was in the rehab center, had even visited me once or twice with my sister, who was caring for him- but he had Alzheimers so sometimes he would get overly upset and obsessed about certain subjects- i had not called him while i was in the hospital so as not to worry him, but i called him june 6th after my niece told me- it was the last time i talked to him- he died the morning of june 8th in his sleep. it had been expected since last october, but unexpected at the same time since he didnt seem overly ill- he had aortic arch aneurysm which apparently started leaking a couple days earlier. i thank god he didnt suffer, as we had been prepared for the worst- a bloody, painful experience. my sister said when she found him, his arms were folded behind his head and his feet were crossed, after seeing him sleeping on his side an hour earlier, i left the nursing home and sat with him awhile, and proceeded to spend the next 6 days out for large portions of each day and was doing well amidst my grief. i was leaving for his internment and pt said i must come back afterwards or medicare would kick me out.
i came back after pushing my walker thru thick grass and uneven terrain and had some brutal therapy that really wiped me out. the next day my legs were were worse, and so on, another relapse had started. i fell using the bathroom that sunday evening- nothing broken but some nasty bruising and a wrenched back- and by tuesday i could barely stand even with my walker.

i'll continue this later...

I am so very sorry to hear about your Dad, Clarkstar. Even when it's expected it's still a shock. I'm glad to hear that you and he had contact before he left.

I hope your condition improves. I'm surprised they wanted you to continue with the PT after coming back from your Dad's services. Seems like they could have given you at least one night to get some rest after all that overexertion. Mental stress can be just as debilitating as physical stress. I really hope you get a break and feel better.

Wish there was something I could do instead of just say "hope you feel better" but please just know that you're in my thoughts and prayers and I really do hope things start to improve for you.

Bless you Clark. I'm so sorry for your loss. . Love and
prayers for you.

Because I have MS and the fatigue factor, the PTers let me
rest between exercises and to have some meals in bed, so
that I could rest between sessions. That did help a lot.

See if you can explain your fatigue factor and cut you a
little slack.

i was just getting started on these pt people. the week since my dads burial i had gotten worse every day, no matter what i did. i had a "care conference" on the following friday which was laughable, they were saying i was doing much better and would be going home on the 25th.my neuro was on vacation but his office said to go the er for ivsm on the 24th once i got there, it took several hours to get the ivsm, then my neuro's partner said to send me back to the nursing home and i could continue on oral steroids, which was contrary to what my neuro had wanted to do the 2 previous times. but whatever, so when i got back to the nursing home i could barely move my legs at all, i needed an aide to lift my legs into bed i was supposed to go home on tuesday, so i complained to the therapist that i was in no shape to go home at all. she said they would keep me another week. then here comes the phys therapy manager, who i had mentioned to the therapist that the care conference sounded like a bunch of bs to me. this lady proceeded to tell me that they werent going to "fix" me and i would be in a wheelchair soon no matter what. she also said i should see a psychiatrist or psychologist, cant remember which. she seemed a little perturbed that i did not agree that i was ready to go home.

i did walking therapy all week, just short walks which i could go about 20 feet before having to sit and rest. on friday i had the slave driver pt lady again. she acted liek i hadnt done anything all week and that why i was so much worse than the previous week. she said she'd had many patients with ms before and they all responded well- disregarding that i had done everything asked of me with a smile and been working my butt off to try to get better, only to keep backsliding. i didnt even bother trying to argue with these numbskulls. now i am due to get out in 3 days, to go to my sisters house, where the plan was for me to stay while waiting to get disabled access apartment, not have her be my damn nurse. i am at a loss what to do here, i am not ready to go home, i cannot care for myself, and the therapy mgr kept saying i didnt need 100 oercent care. i guarantee i cannot get into my sisters home unless i am in a wheelchair with a couple strong guys pushing it. i cannot walk her ramp with my walker as its pretty steep and i could not stop to rest on it.

well anyway rant over. this sucks~!

i really miss my dad too, he was a great guy

Was anyone there with you during this conference? Is there anyone who could be your advocate besides yourself?

It sounds like this nursing facility is probably coming up on the maximum number of days they can keep you in their care and wants your records to show that you're ready to be released when, in fact, you aren't. I might be wrong but that's just what it sounds like. It sounds very frustrating and I hope things can be worked out for your benefit.