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There is a lot of good advice here. I can only repeat what everyone else has said: everyone's MS is DIFFERENT. The trick is not to compare yourself to others. That's hard to do in the beginning because you are desperately looking for answers to all sorts of questions.
Some of those questions have no answers like: how bad will my MS be in 10 years? Or 20 years? Will I be in a wheelchair like many of the people in the waiting room? Will I lose my sight? Will I have to use a catheter to urinate? etc. etc. etc. My diagnosis came in my late 30s and was a complete shock. It started with very mild optic neuritis and then a month later some mild dizziness. I was petrified in the beginning. It's very easy to imagine symptoms you don't have -- meaning that fear can manifest itself physically in your body. For example, I was sure I was developing tingling in my hands and face but it turned out to be a symptom of anxiety attacks. I never did get tingling/sensory stuff again. This disease sucks in that there is no cure and no definitive prognosis! All you can do is learn to live with the uncertainty. Prayer, meditation, mindfulness, exercise, socializing and more can help you. Eventually you will figure out what works best for you. ![]()
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On Tysabri and love it. . |
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