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#1 | |||
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Elder
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Right now I'm in a semi-normal sleep pattern. Well, all things considered. I very rarely sleep in my bed anymore
![]() ![]() ![]() I sleep in my recliner. My combination of egg crate pad, leg pillows, arm rests, etc. keeps me in a position favorable to my various ailments and body parts. I don't drink much water after maybe 5 p.m., so I only get up at night to use the bathroom about once, maybe twice a week. I have an occasional night where I'm freaked out or have serial nightmares or have an unusually high level of pain, but I usually sleep about 8 hours. I could probably sleep 9, but my bladder will only last 8. ![]() I doze/nap a few times a week. But periodically I have a spell--sometimes a day or two, sometimes several days--when I can just barely keep my eyes open, and I'll take a couple of naps a day. Back when I was first diagnosed, I could sleep ten hours a night, and most of the week-end. And still be tired all the time.
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* * * **My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26) |
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#2 | |||
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Elder
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I do best with a 10 hour sleep but when I need to get up with less than 10 hours I can do it. I don't know if it is due to adrenalin or not since the only times I do that is when I am traveling to see the kids. When my husband had his heart attack and I had to get less than 10 hours I was a jombie. The only aide I take at night is my Clonazepam and Amitryptyllin. Spelling I'm sure is wrong on both those meds. But if I don't take them I don't sleep well at all. So is that addiction???
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"Thanks for this!" says: | SallyC (05-28-2013) |
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#3 | ||
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Member
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"Thanks for this!" says: | ANNagain (05-28-2013) |
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#4 | ||
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Senior Member
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Quote:
![]() http://www.cesar.umd.edu/cesar/drugs/benzos.asp
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He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion. Anonymous |
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#5 | |||
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Member
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"Thanks for this!" says: | SallyC (05-28-2013) |
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#6 | ||
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Senior Member
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Quote:
![]() The difference really is what someone considers addicted/addiction vs. physiologically dependent or increased tolerance. What is very important to know is that benzodizaepines should be tapered with a prescriber's supervision as the withdrawal can be dangerous as is combining them with alcohol.
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He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion. Anonymous |
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#7 | |||
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Member
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My neuro wants me to get off the lorazepam I've been taking for sleep every night for the past 5 years. I started before I found him, partially because of anxiety due to the diagnosis. Yikes. I was at 1.5 mg. Now I've dropped to 1 mg plus 5 mg of Ambien. Then it's on to .5 mg of lorazepam and 10 mg of Ambien. Then ultimately it's off all lorazepam.
He told me benzodiazepines are the absolute WORST for sleep because they don't allow you to go into a deep REM sleep. He said that's not a problem with Ambien and when he gets people off benzodiazepines they come back and say I'm now dreaming all the time. And his response is "well that's normal because now you are getting deep sleep!" Benzodiazepines don't contribute to healthy sleep and they can exacerbate depression and cause cog fog and memory issues apparently. He really believes sleep is almost more important than diet or exercise. He found that what many people thought was MS fatigue was actually bad sleep. When they started getting good uninterrupted sleep the fatigue improved significantly. So that's my #1 goal -- fix my sleep. I also got a lecture about how the sleep you get during daylight hours is not as good as the sleep you get during the time the sun is down. I was told to stop going to bed so late and getting up so late. ![]() In general my neuro's goal is to find medication that helps with bladder problems at night to minimize interruptions, advise drinking less water before bed, and keep pets from bothering your sleep and even snoring spouses! And the bedroom is only supposed to be for sleep or sex, nothing else. All of this is referred to as sleep hygiene.
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On Tysabri and love it. . |
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#8 | |||
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Member
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Once upon at time I was a really good sleeper - I have always been a night-owl, but 8-10 hours of quality sleep? Not a problem. Then I had open brain surgery, and it all stopped. I was no longer able to turn off my brain, with racing thoughts every night and usually no more than three-to-four hours sleep per night for about a year after my operation - I was a total zombie.
Things have improved a lot since then - still a night person, I do still have trouble falling asleep but nowhere near as much. Now, my problems come from burning legs and feet, and not sleeping due to stress from knowing that I am behind in my work because I can't seem to process or concentrate as well as I used to, which in turn reduces my productivity. Given the opportunity, I could sleep for ten hours a night these days. I just always seem to have work (marking or lesson planning or whatever) to do until late at night - which I am sure, explains why I can' sleep.
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Lyn . Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993. |
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#9 | |||
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Wisest Elder Ever
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I never sleep more than 2-3 hours at a stretch. Day or night. I have pets that like to eat once during the night and I guess I'm "programmed" to get up for that. It doesn't seem to bother me. I can nap during the day if I feel I need more sleep. I've never needed alot of sleep, though. I've always done well with about 5 hours of sleep total......meaning it's not consistent hours!
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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#10 | ||
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Senior Member
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Quote:
__________________
He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion. Anonymous |
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