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#1 | ||
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Junior Member
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So far I find my appetite is a bit suppressed, fizzy drinks taste super weird (to the point where I don't drink them anymore) and every now and again I get nauseous for no good reason? It does seem to have helped my tremor though... Keep us posted. |
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#2 | |||
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Member
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Hi Kitty
I was prescribed Topamax for nerve pain (burning and such) and also because all my 'messages' were getting totally scrambled and my legs were just giving way and I was falling way too often. I am only on a relatively low dose, I haven't had an 'MS fall' since starting the med, and I have only had one or two sleepless nights with burning legs/feet since I started it. I so hope that this works for you - I know it is also prescribed for migraine (and, I think) for post-herpetic neuralgia for shingles pain as well as epilepsy. Good luck and let us know how it goes. xx
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Lyn . Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993. |
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#3 | |||
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Member
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So far, the nerve pain seems to be quieting down alittle. Still have some but not nearly as bad. My appetite is pretty much gone. Im lucky if I eat one item a day, and drink one bottle of water a day. I have just lost all interest in eating and drinking. If I force fluids, I get nausea and vomit, so I dont force it any more. My tremors are getting worse, and my hand writing has gone from a 42yrs old to a 1st or 2nd graders. DH is panicing, me, Im like whatever, its just the MS. I talked to the pharmacist about the loss of appatite and not drinking and she said it was the topamax, so Im not real worried. Hey, maybe I;ll finally lose those extra pounds.. hehe!! (gotta find humor where I can folks!)
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Dx RRMS April 1992 Yearly flares from 92 to 11 MS induced seizures 2002 Flare Oct 2011 Flare Dec 2011 Left disabled after 2 previous flares Betaseron '02, Copaxone '12, Tecfidera '13 (allergic reaction to all) No longer taking any MS therapy meds |
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"Thanks for this!" says: | SallyC (06-04-2013) |
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