Kitty-

I feel so badly for you! Sending the evermost gentlest of hugs your way and offering up a quiet prayer that you find relief - and FAST. I agree with Sally - it sounds like that the anti-d is not the right one for you (at least anymore). I encourage you to find the will to demand your doctor investigate this.

When life sucks, know that we care

Is a Baclofen pump a possibility for you? Getting Baclofen, about the most popular spasticity med for a reason, directly into your spinal fluid. In my unprofessional opinion, it sounds like some of your pain, and certainly the spasms, tightness, and "fisting" hand are spasticity-related.

http://www.webmd.com/multiple-sclero...-baclofen-pump

They don't just to the surgery and hope for the best. It gets tested first by injection first.

I'm sorry you are having such awful pain.

I only have huggs for you, hun.....take care

Being in pain is the worst and certainly, exhausting and leaving open all those other feelings and emotions.

I hope you are able to get some pain relief. 21 years of fighting this illness, and I don't blame you for feeling down, right now.

Were you able to discuss with your dr the pain increase, yet? Is there a speeded up appointment in the works?

So sorry you are experiencing such misery...

Don't be afraid to tell your doc you need to try a different AD...

Also, my neuro tries different meds to alleviate the spastic pain. I'm on baclofen and clonazipam together. I was on zanaflex, which worked really well, but I experienced irregular heart rhythm and a low pulse, so I had to get off of it.

I hope you can be proactive with your doc and try different meds. I know for a fact that cannabis also quickly relieves spasticity.

Keep us up to date, and maybe you should also try to see a therapist that uses biofeedback. It trains your body to deal with pain. Again, we are praying for you and sending you (gentle) hugs...

I dont qualify for medicare until February, so I am waiting patiently as I can for February to roll around and I had planned on asking my neuro about that then. Thanks for the reminder.

[QUOTE=Debbie D;990765] I'm on baclofen and clonazipam /QUOTE]

My neuro has tried several different meds with me for my spasms. I too was on baclofen and clonazipam and it didnt work at all. Im back to the baclofen and tizanadine, its doing alittle but not enough, but at least its better than baclofen and clonazipam. I never wanted to try cannabis, or watever, but Im telling you, if they legalized it, I might be tempted right about now.

kitty,
i'm so sorry for what you're going thru.
please concentrate on what you can live for.
i think your post here is so well spoken.

i'd like to see you copy it and send it to your drs. maybe they can find it in their medical knowledge and hearts to re-examine your case and try to help ramp up your medical tx.

please don't give up. we're here for you. i'm glad you have your dh to hold onto.