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Old 06-08-2013, 01:26 AM #1
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I've had this at times over the years but it rarely happens anymore. It doesn't mean it will be normal for you. But I know how frightening it can and it doesn't mean it will be the norm for you. It happened more often for me early on when I pushed myself too hard and I didn't know what my limits would be from MS.
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Old 06-08-2013, 10:28 AM #2
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I have this too. Caffeine makes it worse. Make sure your blood pressure is okay first....
Doc had me try low dose Ativan for the dizziness and it helped a lot. (.05) I only take it when I go out or drive to the grocery store. Its worked well for me. He had me try it because it doesn't work for everyone. Its a preemptive strike, because it takes awhile for Ativan to kick in. My dizzy level was at very low level and more like a constant off balance but would get a tad worse with excitement......and yes going to the grocery store is excitement. Also for a time, the bright fluorescent lighting in those places bothered me. I would experience the same thing you did, felt as though I was going to pass out with it.

I get it a lot around the house. It acts like low blood pressure so you need to make sure that is not what you are experiencing. I got myself a cheap blood pressure cuff and kept a log for awhile.

Also; are you prone to anxiety or panic attacks?

Hang in there skywalker!!
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Old 06-08-2013, 11:25 AM #3
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After I got home from the grocery store, I took my blood pressure and it was 158/85 with a pulse of 83.

I had my first anxiety attack near the end of last year, but that was due to my surgeries (totally different from MS related).

I haven't really had one since then.

I also have found that bright lighting hurts my eyes as well, but I didn't think it was MS related. When my problems started, it was back in Feb. I had double vision while driving for the first time ever, and almost had a wreck due to it. That is what led me going to the doctor in the first place.

I get headaches a lot as well. Today has made 2 solid weeks that my back and legs have hurt tremendously. I've had the MS hug happen again this week around my waist.

Dizzy spells happen most of the time when I leave the house and go somewhere. I get dizzy esp when I'm riding in a vehicle.
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Old 06-09-2013, 10:10 AM #4
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Quote:
Originally Posted by karilann View Post
I have this too. Caffeine makes it worse. Make sure your blood pressure is okay first.

Yepp....no caffiene here and I keep a close watch of my BP. We have high heart disease in my family...even my sister is on BP meds.

That major dizzy episode I had that actually made me fall I thought was my BP or having a stroke.... turns out my BP was fine that day and that I was prompted to the neuro that day.

terrible, terrible, terrible day....everything came out.

That's what happens when you ignore symptoms for two years before doing anything.
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Old 06-09-2013, 01:54 PM #5
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Grocery stores are notorious for being difficult places for many MS'ers. The florescent lights and the rows of products - it just overwhelms the eyes. Add a sometimes black and white checkered floor and some music and yes, "I gotta get out of this place!" Makes me weak in the knees and I can't explain what it does to my vision.

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