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#1 | |||
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In Remembrance
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Quote:
![]() I was 1st DX in 1976 and had a long remission/dormant stage, until 1993. Don't question it, enjoy it while it lasts. ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#2 | ||
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Senior Member
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Unfortunately the thing about MS is it can be relatively easy for years and then bam, it gets ya.
![]() I think Sally gave excellent advice. I feel blessed now and plan to work like a fiend until I am no longer able.
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He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion. Anonymous |
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#3 | |||
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Member
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Sally could not have said it any better. Ive had it for 21yrs now, and the first 19yrs I seriously almost forgot I had it. Enjoy the peace and quiet while you have it, because like the other poster said, BAM!!!! , it can hit anytime, without warning.
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Dx RRMS April 1992 Yearly flares from 92 to 11 MS induced seizures 2002 Flare Oct 2011 Flare Dec 2011 Left disabled after 2 previous flares Betaseron '02, Copaxone '12, Tecfidera '13 (allergic reaction to all) No longer taking any MS therapy meds |
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#4 | |||
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Member
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There are milder cases of MS. Everyone is different. I was diagnosed with optic neuritis in left eye (but still had 20/20 vision, only like looking through something smeared with Vaseline) and mild headaches. The only problem I have had in the past 6 years since diagnosis is fatigue from heat mostly and the vision issue. (KNOCK ON WOOD!)
![]() Then again I have been on Tysabri for 5 years, although I couldn't tolerate interferons or copaxone. I'm glad I went on Tysabri and got aggressive with treatment. Going medication free was not something I ever considered. I still work full time and am not limited by anything except heat. And speaking of which, it was 99 degrees today and after running errands, it just about wiped me out! The first year of my MS, given the fact I got multiple opinions and failed on Copaxone and Rebif after a short time, I really wasn't being treated. And nothing happened the first year. So it is possible to start slow with little to show. I should add I have many lesions on my brain and even "black holes" which are evidence of permanent deep damage.
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On Tysabri and love it. . |
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#5 | ||
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Junior Member
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Thanks for the advice all.
I guess it's just been hard to relate to a lot of the stories I hear from other people with MS because I feel fine at the moment. Point taken, make the most of it! My Neurologist also said that with only one attack, they wouldn't necessarily recommend starting medication but the choice was mine. My thoughts are, if the side effects aren't bad, it would be better to start early. Any thoughts? S. |
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#6 | |||
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Senior Member
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Just because it can hit hard doesn't mean it will. I don't know howw to search for such material, but after living with MS for over 13 years and being on message boards for most of that time, I've learned that people whose first symptoms are either sensory or vision problems (mine were both, years apart) have a much less aggressive course of MS. Please understand that with MS there are no such things as "never", "always", or "everyone".
Enjoy your situation while you can, and may it last forever! (it could ![]()
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RRMS, diagnosed '00 Everything will be alright in the end. If it's not alright, it's not yet the end. |
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#7 | ||
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Junior Member
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Thanks Sparky!
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