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Old 06-28-2013, 01:20 AM #1
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I'm sorry to hear about the loss of your cousin. I will keep you and your family in my prayers.

MS is such a funny disease. It can be real active for a while and then slow down and then pick back up again. It's so unpredictable and you just never know what's coming next or what symptom is going to start up or stop.

Sometimes our brains rewire themselves and we're able to do things "normally". My right hand is severely impaired. According to testing, I should not be able to use it for much of anything. Apparently, I am 97% impaired with my right hand and I'm right-hand dominant. However, I use it just like a normal person for the most part - when the tremors are bad I can't do some tasks. So I do believe that our brains can rewire some things.

You have really had a tough time with your MS and I'm so sorry. I feel bad as you are so young, only a couple of years older than my daughters. I know this must be so hard on you being so young. I can only imagine what my girls would be going through at 23 and almost 22 and having MS. It saddens me to think of what you must be going through right now. I hope that once you get in to the new neuro they are able to help you so that maybe they can slow down the progression.

Hang in there Anya!
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Old 06-28-2013, 09:51 AM #2
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I have a special knowledge of your feelings Ayna, since my Dear
Cousin, also took his own life. I loved him dearly and wish I had
talked to him about his pain, but, at the time, felt that I would
be intruding on his privacy. He should have known that I/we
were behind him.
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Old 06-28-2013, 02:52 PM #3
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Thanks Tkirk

MS has strengthened my soul, not my body, but my soul. It has taught me alot. I've learned patience. and optimism.

I've read that when theres an area a message cant get through, that the body rewires that section so it can travel a different route. Thats amazing.

I need to start taking care of my soul, and watch my self thoughts. As those thoughts are whats feeding the body.. I forget sometimes and spiral into a slew of negative, hateful thoughts, and that's just not right.


SallyC-- I am so sorry to hear of the same situation for your cousin.. I wish they would've known we were there for them.. Maybe they did and just didn't feel they could come out of the dark hole they had fallen into. From this horrible experience, we learn to come together. At least I hope. Things are very rough and jagged right now. It's time for the anger part of mourning to kick in.

I am going over to their house today to hang with his brother and try to get my aunt out of her room and eat something. I cant stop worrying about them, especially her mental/physical health.

I just wish all the pain to go away.

Thank you all for the support. It lightens my heart a lil bit and thats really what I need right now
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Old 06-28-2013, 07:57 PM #4
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Default So sorry for your loss..............

When I get where I’m going…
on the far side of the sky;
the first thing that I’m going to do
is spread my wings and fly.
I’m going to land beside a lion
and run my fingers through his mane.
Or I might find out what it’s like
to ride a drop of rain.
When I get where I’m going,
there’ll be only happy tears.
I will shed the sins and struggles
I have carried all these years.
And I’ll leave my heart wide open;
I will love and have no fear.
When I get where I’m going,
don’t cry for me down here.
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Old 06-28-2013, 11:01 PM #5
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Quote:
Originally Posted by karilann View Post
When I get where I’m going…
on the far side of the sky;
the first thing that I’m going to do
is spread my wings and fly.
I’m going to land beside a lion
and run my fingers through his mane.
Or I might find out what it’s like
to ride a drop of rain.
When I get where I’m going,
there’ll be only happy tears.
I will shed the sins and struggles
I have carried all these years.
And I’ll leave my heart wide open;
I will love and have no fear.
When I get where I’m going,
don’t cry for me down here.


This is so beautiful! Chills and tears! I needed to read this so very very much!!
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Old 06-28-2013, 11:11 PM #6
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Quote:
Originally Posted by AynaDee View Post
This is so beautiful! Chills and tears! I needed to read this so very very much!!

It's by country singer BRAD PAISLEY -- song LYRICS
"When I Get Where I'm Going"
(feat. Dolly Parton)

http://www.azlyrics.com/lyrics/bradp...reimgoing.html


*song lyrics might be copyrighted, so a link to the source is always a good idea*
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