A few weeks ago I was on my couch and my legs got cold. So I put a blanket on my legs. After a few minutes or so from my knees up to almost my hips it felt like heat was coming out of that area. It only lasted a few minutes. When my cold feet seem to feel normal all of a sudden the heat came from them. I thought there was a fire under my blanket and the heat was shooting out. Told the Neuro but he didn't say anything then. I had an lp after and it was normal. So yesterday and now today I'm having the hot spots again! Anyone know what this is?

Hi Lilmama

I don't exactly know why, but I get intermittent bouts of icy-cold and burning sensation too - in my feet and legs - particularly in my left foot, and the burn is starting to radiate up to my buttocks and hip sometimes too.

It's all part of the sensory merry-go-round. Your body is sending mixed messages to your brain. My neuro has put me on Topamax and Dothep (one is an anti-convulsant, and the other is an anti-depressant) - not that those problems are the issue, he is just trying to confuse the 'pain gateways' that cause my issues.

So far, yes, it works in a limited capacity - I still have bad nights, but not near as many as before (which was almost every night - and lots of days).

Keep asking questions, and keep asserting your problems to your doc. For the doctors, it's easy from the 'cheap seats' to discount the things they can't see, but in terms of quality of life it can make a huge difference for you.

Good luck and I hope you get some relief

Maybe your Doc wasn't dismissing your cold/burning, but just
that, he had heard that before from all or many of his/her MS
patients. It's one of those usual "unusual" MS symptoms.

I get that all the time and my neuro chalks it up to neuro pain or sensory sx. And as alot of docs will tell ya, there's a med for that~~