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Old 07-08-2013, 12:28 PM #1
missj missj is offline
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you will be in good hands at UCSF. Have been going there since 1998. Sometimes getting in and even getting thru can be a challenge but its worth it.
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Old 07-08-2013, 04:54 PM #2
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I had evidence of having an "intention tremor" the other day at the Dept. of Motor Vehicles.
To get in line for an appt. to renew your license, you have to go to a computer screen and push the letters in your name. I did this, and I produced two M's at the beginning of my name. I did this without realizing. I then saw my name with two M's up on the board listing waiters for service. I believe I've had this "forever", long before dx, and it impedes me in some activities without even announcing itself by anything but eventual weakness and fatigue of the muscles. For instance, when I was a teen, I tried to wash windows at our home. I would soon collapse with utter fatigue of the arm, and even spastic pain. I believe I was having this "intention tremor" every time I pushed on the rag to wash the window, and it wore me out quickly, but no one had any idea why I pooped out so quickly at such tasks (I still do, if washing sink, etc.) I was a runner and a very good performing dancer, so it did not affect my legs at that time. And it made me seem like a lazy bum to my mother and, later, others. It's part of the hidden damage of this disease.
I see no reason, if you are covered by insurance, for not going ahead with some tests now, which you mention. The results can be conveyed to UCSF when you have your appt. there, and can either be accepted by them or repeated if they need to. You indeed can get some info from your pcp doing tests such as "evoked vision" ones. I had my first dx and first evoked potential and MRI from a general practitioner. Of course later I saw a neuro and more tests were done--quite a few more MRI's over the years. But it took a smart pcp to tell I needed my first MRI and evoked potentials. You are so anxious now that it might be well to be tested now, what do you think?
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Old 07-08-2013, 05:24 PM #3
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My PCP's office called, said to go to an allergist for the hives, I stopped her and told her about my tremors. She wanted to refer me to the only one in town...that doesn't take insurance (and I'm broke). I can call the cruddy one sort of nearby, call one that's good sort of nearby but has a long wait.

I just called UCSF and asked to be put on their cancellation list. I'll keep calling back. I'll also call the long waiting list neuro when I can get my brain together (that could take forever).

I had an MRI already, brain looked good. But everything I've read indicates otherwise. Stupid internet!

I've noticed I'm worn out in my arm with all of this. My muscles are working even though I'm not telling them to. I have some xanax and soma at home. I've noticed that many people take baclofen. I'm wondering if the soma would help?
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Old 07-08-2013, 11:12 PM #4
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I'm not sure on this but I think that intention tremors are more a part of diseases like Parkinsons. The tremors with MS seem to be more generalized and may be related to exaccerbations and/or stress (all forms). The tremors may seem more pronounced in the extremities (hands) when trying to do something though.

I've had a whole body tremor going for the last couple of months which varies in degree. Sometimes it is so severe that my head is shaking too much to read or see clearly (double vision).
A trade off is Baclofen, which takes the edge off for me...but leaves my body too weak and my mind too stoned to do anything meaningful.

Hope that you get some answers and some effective treatment underway.

With love, Erika
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Old 07-09-2013, 06:30 AM #5
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I stand corrected...was just going by my own experience.
Here's an article about it.

MS tremors
http://ms.about.com/od/signssymptoms...r_overview.htm

With love, Erika
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Old 07-09-2013, 06:44 AM #6
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Chaos--

I initially came to this forum due to tremors that didn't really respond to meds, yet aren't Parkinson's in nature. I have an intention tremor in my left hand which can progress into a resting tremor when I am tired beyond belief. (I have other symptoms which led me to the MS thread in particular, but I feel like that's besides the point here).

I am obviously no expert in MS, I actually haven't been diagnosed with it (which is good? I guess? But they still don't know what's wrong with me? Annoying!). Tremors, however, I know a bit about. I've got 2 clean MRIs of my brain and Cspine.

Look into seeing if you're able to control it with medication. I have been on beta-blockers (which worked for a while), primidone (which worked for a shorter while) and now Topamax (which I've been on for two months so I guess it's too soon to give a full opinion).

It might not have anything to do with MS. It could just be something along the lines of an Essential Tremor, a tremor that is super annoying but not disease related.

Keep us posed-I'm always interested in those who shake.
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Old 07-09-2013, 07:27 AM #7
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This is the sort of tremor that I have going on lately. Sometimes it is less, sometimes, more. For the last week it is less, which has allowed me to see (read) and type more easily...as well as do other things. When it is more, doing anything is exhausting within a short time because my hands/legs & feet often have spasms and are numb as well.

Video of MS Whole body tremors
http://www.youtube.com/watch?v=NszHrbeA8sU

With love, Erika
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