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Old 07-08-2013, 04:54 PM #3
Mariel Mariel is offline
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Join Date: Dec 2006
Posts: 724
15 yr Member
Mariel Mariel is offline
Member
 
Join Date: Dec 2006
Posts: 724
15 yr Member
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I had evidence of having an "intention tremor" the other day at the Dept. of Motor Vehicles.
To get in line for an appt. to renew your license, you have to go to a computer screen and push the letters in your name. I did this, and I produced two M's at the beginning of my name. I did this without realizing. I then saw my name with two M's up on the board listing waiters for service. I believe I've had this "forever", long before dx, and it impedes me in some activities without even announcing itself by anything but eventual weakness and fatigue of the muscles. For instance, when I was a teen, I tried to wash windows at our home. I would soon collapse with utter fatigue of the arm, and even spastic pain. I believe I was having this "intention tremor" every time I pushed on the rag to wash the window, and it wore me out quickly, but no one had any idea why I pooped out so quickly at such tasks (I still do, if washing sink, etc.) I was a runner and a very good performing dancer, so it did not affect my legs at that time. And it made me seem like a lazy bum to my mother and, later, others. It's part of the hidden damage of this disease.
I see no reason, if you are covered by insurance, for not going ahead with some tests now, which you mention. The results can be conveyed to UCSF when you have your appt. there, and can either be accepted by them or repeated if they need to. You indeed can get some info from your pcp doing tests such as "evoked vision" ones. I had my first dx and first evoked potential and MRI from a general practitioner. Of course later I saw a neuro and more tests were done--quite a few more MRI's over the years. But it took a smart pcp to tell I needed my first MRI and evoked potentials. You are so anxious now that it might be well to be tested now, what do you think?
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