Thank you everyone for sharing!


It really does sound so varied.

First symptoms of mine were my whole leg went numb from waist down for over a month, which then led into 2 bouts of optic neuritis within a month of each other in both eyes.

Have had symptoms much more before this tho with extreme fatigue, bad headaches and odd pain. But never thought anything of it as being young and not taking the hints.

My first experiences as a child were weak arms and poor eye-hand coordination. I could not play the childhood ball games, although I could dance and walk well. I could not use my arms for hard pushing such as washing windows.
I was diagnosed many many years later after I got double vision and had an MRI and evoked potential. In the meanwhile I'd had dizziness and balance problems. I was dizzy frequently but had balance problems only at isolated times, I suppose when I was having an exacerbation. I had cognitive dysfunction on tests after my dx, but that improved with rest and less stress.

Optic neuritis in 1978. Diagnosed as MS at that time.

With love, Erika

MAJOR fatigue, sure there were lots of other things before then, that came, went and I discounted, but I remember looking at a clock and seeing that it said 1.30 pm - when I knew it was only about 11.30 am. Then, when I moved my head, I could see the rest of the time display. I realised I had missing fields of vision.

Over the next few days, I had enormous blind spots, blurring, fog, loss of colour, I was stumbling around, tripping over everything, couldn't get to the bathroom in time, tingling all over and couldn't function mentally at all. I had trouble remembering simple things, following simple instructions, walking in a straight line (walking at all for that matter). Hands, feet and legs went numb, and got left-sided spasticity.