Sorry you have to go through all that Janet. I'm just hoping that it's not going to into a full excacerbation. I have a lot more fatigue right now and my legs seem weaker. It could be the heat, it could be the Tegrtol, it could be the stress.

I have TN too -- and they are not sure the cause. I'm currently in a state of unknown...but have been "surfing" the boards. I know how bad it hurts and my heart goes out to you. They've just changed my meds to 1200 mg Neurotin too.

Best Wishes

Today I'm just floating in Tegretol land.

I think my TN is better today and I'm not floating as much. But my DH is wondering why I dind't call out to the nursing home and see how his Mom is and take the car in for an oil change! Did I mention he works just 2 miles from the nursing home and this 'close to an excacerbation' is due to his Mom being so critical for a week? I felt proud that I took a shower and did a load of laundry today.

Ooooh, ouch, ouch and more ouch!

I feel for ya! I've had it but it was infrequent bouts lasting only for a bout a day a few times a year. But there's not question what it was... there's no other pain like it.

Sorry, I can't help with respect to pain meds... neurontin maybe?

I really hope you find some answers... this is one of the worst symptoms we can have I think.

I have been having a bout with TN today, NOT FUN. It usually flairs up every 4-8 weeks for a few days, or maybe just the initial "attack" then a dull ache for a few days. My dentist suggested that I might have this, as there is no other physical reason that I would be getting this pain. I don't have the official DX of MS just possible, for the last 2+ years.

I'm hoping that cymbalta that the neuro put me on for nerve pain will help. It's strange that I just started on it yesterday and I get this today...............
Pat

I have been lucky, not to have suffered from TN...(knocking on wood)
I did have Shingles of the facial nerves, though, so I know the horrible
pain you are suffering.

I am so sorry for your pain and I hope you find something to help you
all soon.

I have a question of you TN sufferers. Have any of you had Shingles?
I was just wondering if there is a link to TN, since the pain is similar. Valtrex helped my shingles and I have had no residual pain, which usually follows Shingles for years after the initial attack.

The same herpes virus which causes Shingles, chicken pox and Mono,
is thought to have a link to a cause for MS. I have heard of a few people
who take Valtrex at the start of a MS attack. It works for them and their
MS. so maybe Valtrex could work to stop TN attacks.

Just a thought...what do you think?