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Old 07-18-2013, 12:34 AM #1
Midori2013 Midori2013 is offline
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Default Nervous about MRI results

So, I saw my neurologist today (whom I will definitely be getting rid of. She answers nor explains anything,).


But at any rate I told her all my symptoms- the brain fog, word finding probs years ago, cob web sensation in face, bowel issues, and recently leg sensation issues- and she ordered up an MRI.


I have been to SO MANY doctors in the past. So many dismissive doctors.


I'm actually more afraid of NOTHING coming up on the MRI than something. Nothing to work with to me is scarier than something. I can deal with something. I just don't know if I can handle "nothing" anymore.

Sigh.


So I go in on Monday. Are we allowed to ask the technicians if they saw anything unusual once the MRI is over? Or are they not allowed to say by law?
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Old 07-18-2013, 12:39 AM #2
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its very rare for a technician to say anything. I have a lot of the same issues as you except mine was caused by a brain injury. nothing shows but all of the symptoms are there. a visual test finally confirmed brain damage. please do not use your strength worrying about the results. that day will come before you blink your eyes. I have tried to stop worrying about the symtpoms getting worse and god knows what else. it is not worth it in the end. i'm so glad I found this board and have people to talk with. good luck and let us know what happened.
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Old 07-18-2013, 06:58 AM #3
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Quote:
Originally Posted by Midori2013 View Post
Are we allowed to ask the technicians if they saw anything unusual once the MRI is over? Or are they not allowed to say by law?
You can ask but the tech can't and won't give you any results, only or doctor can.
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Old 07-18-2013, 07:16 AM #4
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One step at a time is my suggestion. The journey to diagnosis can be long one.

Best of luck to you .

With love, Erika
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Old 07-18-2013, 09:02 AM #5
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I agree with Mark on this - technicians rarely (more like never) comment on anything. They leave all the heavy lifting up to the doctors in terms of diagnosis and treatment.

So they should though - that's what they get paid the big money for!
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Old 07-18-2013, 10:48 AM #6
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I was so worried I ended up having my period for more than 2 weeks (I have some endo though). Then I went in and the doc said "Inconclusive". Totally frustrating! Now I have to wait until Sept to go to the big girl hospital.

Try not to worry too much. I know, it's like saying calm down to somebody in labor.

Be sure to get a CD with the images on them. If nothing else it's totally cool to see the pics of your brain.
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Old 07-18-2013, 06:58 PM #7
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Waiting for the results can feel like torture sometimes. You really don't want them to find anything and yet, you do because you know something is not right. And, like a lot of us MSers, even when something was found we did not receive a dx right away. We played the wait and see game. I went to an MS specialist/researcher and played the wait and see game with her. It took 3 years for the game to finally end and while I knew it was a real possibility, it still kind of took me back a little. I knew I probably had and a few months earlier she thought I had a benign course of it or CIS (clinically isolated syndrome), it wasn't until my 3rd major flare that it hit me.

Hang in there and know you are not alone in this waiting time. We are here for you. Update us when you know the results or even if you have questions.
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Old 07-18-2013, 09:30 PM #8
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Quote:
Originally Posted by tkrik View Post
Waiting for the results can feel like torture sometimes. You really don't want them to find anything and yet, you do because you know something is not right. And, like a lot of us MSers, even when something was found we did not receive a dx right away. We played the wait and see game. I went to an MS specialist/researcher and played the wait and see game with her. It took 3 years for the game to finally end and while I knew it was a real possibility, it still kind of took me back a little. I knew I probably had and a few months earlier she thought I had a benign course of it or CIS (clinically isolated syndrome), it wasn't until my 3rd major flare that it hit me.

Hang in there and know you are not alone in this waiting time. We are here for you. Update us when you know the results or even if you have questions.

Aww. Thanks so much . I will keep you posted. I have my MRI Monday and follow up with neuro the following Monday but the MRI place said they will give me copy of results two days later.
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Old 07-18-2013, 10:06 PM #9
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Warning - When you get the copy of the MRI results DO NOT consult with Dr. Google, Dr. Yahoo or Dr. Any Search Engine. Take a good deep breath and trust Dr. Real Breathing Live or rather Dr. Real Radiologist. We can help with some of the things on the report but ultimately, it's the neurologist and the radiologist that you have to trust. We're just Dr. Personal Experience.
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Old 07-19-2013, 12:56 AM #10
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Quote:
Originally Posted by tkrik View Post
Warning - When you get the copy of the MRI results DO NOT consult with Dr. Google, Dr. Yahoo or Dr. Any Search Engine. Take a good deep breath and trust Dr. Real Breathing Live or rather Dr. Real Radiologist. We can help with some of the things on the report but ultimately, it's the neurologist and the radiologist that you have to trust. We're just Dr. Personal Experience.
Haha. Yes. Absolutely! I promise. No googling here, but I my ask you guys a thing or two ;-D
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