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Old 07-23-2013, 12:43 PM #21
ginnie ginnie is offline
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Default another thought

Right around the same time I took the levaquin, about a month or so after, I also had a bout of angio edema, my face, tongue, lips swelled up and I had huge purple raised rashes a number of times. Was in the ER quick for it. They attribulted it to a bug bite, but I never had a bug bite. So again, something was going on for a number of months. Doc. put in the records, spontanous angio edema. Read the article you put up, and it really makes alot of sense to me now. ginnie
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Old 07-23-2013, 03:02 PM #22
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Originally Posted by ginnie View Post
It really does tick me off that doctors prescribe all those meds that are toxic, and never tell us one darn thing about them. I know something happened to me, as a result of this medication. I never hurt myself, and my ankle tendons failed. How can that happen, and how can they say there is no connection????
I will have this awful stuff for the rest of my life. I was on Cipro for that ear infection as well before I took the levaquin. Keep posting the good articles that teach people about this possibility, so that noone else has to go through this. ginnie
Ginnie, there are people who have genetic weakness in tendons.
This is most common in those with Marfan's syndrome.
But there are other genetic conditions that can affect tendon
strength. I know a young woman who had a tendon dissolve in her ankle. She was around 25, and inherited Marfan's. Her mother had it too.
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Old 07-23-2013, 03:44 PM #23
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Default Hi MrsD

I will ask doc about Marfan's syndrome. These tendons of mine never healed right at all. Needed tendon transfers but they were afraid to do all that surgery (achilles tendon also) because of my PN. So I limp around if I do too much walking. Don't know anything about my genetic background as I am adopted. I do have multipal auto immune conditions as well. Right foot not as bad, but has issues. I just wish like so many do, that there was a definative answer for why all the pain. Will look up this Marfan's and see if there is some kind of connection without getting all bent out of shape.
Hope your vacations is great. You do so much for us here. Enjoy yourself. ginnie
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Old 07-23-2013, 03:55 PM #24
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Default Marfans

Only things that sound like it relates to me is, reversed the curve of my spine, tendons ruptured, and I have flat feet, and extreme overpronation. Other symptoms don't seem to fit. Heart is in good shape, had ekg when blood pressure was high. Wish I had my genetic history. Both my kids had some issues as well. ginnie
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Old 07-24-2013, 04:32 AM #25
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Dear WorriedinOhio, Why did you come to the MS board?
Are you and your Doc suspecting MS? I do know, now, not
to take the ABs mentioned, especially if you have MS. I was
on Cipro for a bladder infection and was allergic to it, so got
off of it right away (thank heavens).

Take a deep breath and talk to your PCP about this to see If
he/she can get you in to see a Neuro, preferably a MS specialist,
any sooner, If not, then I would go to the ER for help and
evaluation.

Try not to worry too much as it only makes symptoms worse.

Good wishes.
From what I have read online, that was my other concern. It was my primary concern, really. Then I got on this site and got the crap scared out of me and thought back to that awful medicine.

My PCP is useless at this point. He's given up on treating me, but I have an appointment with a neurologist in August. I'm not expecting pleasant results one way or the other. I'm more or less defeated that something so minor as chest pain has led down this road.
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Old 07-24-2013, 09:33 AM #26
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All this info about antibiotics is very helpful, and I've made a note of mrsD's list for future reference.

Worried, you need to be checked out, and soon. I'm sorry your PCP has given up - s/he needs to be replaced with a proactive medical professional. Giving up on a patient with symptoms like yours is very unprofessional.

When in August is your neuro appointment? Early, I hope. Your situation is shouting for attention.
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Old 07-24-2013, 12:51 PM #27
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All this info about antibiotics is very helpful, and I've made a note of mrsD's list for future reference.

Worried, you need to be checked out, and soon. I'm sorry your PCP has given up - s/he needs to be replaced with a proactive medical professional. Giving up on a patient with symptoms like yours is very unprofessional.

When in August is your neuro appointment? Early, I hope. Your situation is shouting for attention.
I went to another PCP today and didn't like her. She seemed to not care about my symptoms at all, worse than the other. She did order 4 MRI's though on my brain and down the spine. She piggy backed on my diagnosis of the medicine, MS, or an auto-immune disorder that failed to show in the old blood work.

She thought the medicine was lower on the list.

I'm becoming more and more concerned with my ankles. They are vibrating nonstop now and have been for 2-3 days. It went from never to sometimes, to every 30 seconds, to nonstop. My appointment with the neurologist is the 12th. Still quite a ways off.

I've given up hope of curing anything to be honest.
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Old 07-24-2013, 12:58 PM #28
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It can be very frustrating. Some of our PN members have been to 10 or more doctors!

I am leaving for my vacation in a couple of days and won't have easy access to the net for 5 weeks.

You might try finding an integrative doctor, as they typically approach problems in a more global way. Sally at PN uses one with great success. She had a antibiotic reaction too.

Search "integrative doctor + your area" in the keyword and some sites have referral suggestions. Another word is holistic.
I'd avoid the naturopaths for now, as they are not medical and cannot focus on the MS possibilities.

I wish you the best, until my return. Try not to stress too much as stress makes nerve pain worse. And try to take any pressure off those ankles. I'd avoid exercise or vigorous stretching for now a while to protect those tendons. Some people with nerve pain find swimming and water exercise very helpful.
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Old 07-24-2013, 01:41 PM #29
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Originally Posted by WorriedinOhio View Post
I went to another PCP today and didn't like her. She seemed to not care about my symptoms at all, worse than the other. She did order 4 MRI's though on my brain and down the spine. She piggy backed on my diagnosis of the medicine, MS, or an auto-immune disorder that failed to show in the old blood work.
You may not like her, but she's already more proactive than any other you've seen. She must give some credence to your symptoms to have called for the MRIs.

When will you be getting them?
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Old 07-24-2013, 01:53 PM #30
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Also in the meantime, since up to 70% of Americans are low in magnesium...

There is a nice new lotion called Morton's Epsom lotion, which is very inexpensive and very very good for nerve pain.

I get mine at WalMart= $5.98 for 8oz.

Apply a quarters dollop on each wrist, and inner forearm on intact skin (the skin is thin there and blood vessels close to the surface). Do not slather it on like moisturizer. A little goes a long way.
Magnesium blocks pain receptors called the NMDA receptor.
It is also used in the membranes of the mitochondria to enable fuel (glucose and fatty acids) to enter them and be oxidized into energy. Many of us on PN use this now, as it is easier than oral supplements.

http://www.mortonsalt.com/for-your-h...-epsom-lotion/
This is what the bottle looks like and it is in the first aid section of the store. It is also on Amazon.com now.

You might find this very helpful to take down some of your burning. You can use it on your ankles too. For me it is nothing short of miraculous! You will sleep well at night too!
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