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Old 07-26-2013, 10:11 AM #3
jnewk jnewk is offline
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Join Date: Oct 2006
Location: Las Vegas, NV
Posts: 94
15 yr Member
jnewk jnewk is offline
Junior Member
 
Join Date: Oct 2006
Location: Las Vegas, NV
Posts: 94
15 yr Member
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Quote:
Originally Posted by NurseNancy View Post
well, honestly, it sounds like this friend may have to be dismissed by you.
you could try a serious sit down 1 to 1 talk.
you could try giving her some printed MS info on the subject.
or just con't to ignore her but set firm limits based on your knowledge of your body.

after all this is accomplished for you start to keep your distance. if she asks anything tell her the truth.

the summer can be a danger for me too. if i get too hot i can almost be paralyzed. my legs and muscles don't work and i get short of breath.

have you tried any cooling devices? collars? vests? they're not a cure but do help.
Thanks for your reply Judy. I do use cooling aids....an ice pack packed stuffed in my bra works wonders!

I believe that my friend is more blatant about her dismissing and her ignorance because of her mental illness...in general she has no real sense of empathy. And I know that....it just chaps me sometimes when I'm feeling esp vulnerable...like moving in 108 degrees. But I will get thru it. And I have taken time off from most of the people who do that to me. In fact, I didn't speak with her for a year because of her behavior.
I really appreciate your thoughts so thank you.
janet
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