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Started Tecfidera, reluctantly I may add, a few days ago, and so far no problems. Im still having the swallowing/choking issues and neuro still wants to do swallow test but with no insurance, I cant do it.
Im down to eating only yogurt and rice pudding, mashed potatoes and if Im "feeling lucky", I'll have some string cheese. Neuro messed with my meds to see if they were making me slur or if it was the MS and glad to say it was the meds! But the new way he was having me take the meds I was in worse pain so I went back to the old way and surprisingly Im not slurring. ![]() My whole body has stiffened up so bad I cant move. Neuro and I cant seem to find a med combo to help or stop this. He said that when my medicare kicks in he would like to put in the baclofen pump and see if that helps. I totally agreed with him!! Im tired of waking up stiff, unable to move and in pain. I sent away to the MSAA for a bathtub grip and a wheelchair and the easy grip silverware and they finally came in. Its going to be so nice not to have to make sure places have chairs for me when we go out. And now my hands wont cramp up when Im eating! Never thought Id see the day Id get all excited over silverware... lol.
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Dx RRMS April 1992 Yearly flares from 92 to 11 MS induced seizures 2002 Flare Oct 2011 Flare Dec 2011 Left disabled after 2 previous flares Betaseron '02, Copaxone '12, Tecfidera '13 (allergic reaction to all) No longer taking any MS therapy meds |
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