Reply
 
Thread Tools Display Modes
Old 08-22-2013, 09:04 PM #1
Mariel Mariel is offline
Member
 
Join Date: Dec 2006
Posts: 724
15 yr Member
Mariel Mariel is offline
Member
 
Join Date: Dec 2006
Posts: 724
15 yr Member
Default

Speaking of memory foam, I once tried one of those mattresses which are made of that.
I lasted two hours before the intense pain drove me back to my old bed. I guess it's the way Jprinz described it with the memory foam pillow. One does not move much on those things, relaxing into a fixed position, and the reaction of cramping up can be awful. I had them remove the mattress the next morning, had to pay 10% of the mattress cost, but there was no way I could ever sleep on that. This was long ago.

KittyLady, please try some magnesium pills to see if that helps. My potassium tends to take a dive, too, if I don't use 20 MEQ potassium pills a day. I regulate salt carefully, as Jprinz suggests is needed, to get about 1500 mg a day, not too much and not too little.
Since you don't get the baclofen pump for a while, it might help to try some other remedies.

I had NO reaction to the spinal tap years ago. I could not feel it. I am wondering if I am numb in that area, or if the great neurologist was so good at doing this that I couldn't feel it. He was a brilliant man, the one who told me to take magnesium when I could not tolerate Baclofen. Baclofen made me run into walls--one pill and through with that. Zanaflex made my muscles too weak to walk, released too much spasticity. Maybe I needed a smaller dose, but the magnesium relieved enough spasm and jerks so that I didn't try drugs again, except for the small Klonopin dose. I might add that I also take calcium, but always at a slightly lower amount than the magnesium, and for me that is also necessary.
It scares me how close I live to being a jerking spastic monster. What if I can't get magnesium pills some time. I'll be nothing like I am now. I will need intense sedation.
Mariel is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (08-23-2013), Erika (08-23-2013), jprinz99 (08-24-2013), KittyLady (08-25-2013), SallyC (08-22-2013)
Old 08-24-2013, 10:29 AM #2
jprinz99 jprinz99 is offline
Senior Member
 
Join Date: Jan 2008
Location: at home, of course
Posts: 1,140
15 yr Member
jprinz99 jprinz99 is offline
Senior Member
 
Join Date: Jan 2008
Location: at home, of course
Posts: 1,140
15 yr Member
Default

I guess all of this and all of our variables just goes to show that MS is not for sissies

Second me for being someone who spent good $ something new that turned out to be absolutely no good for my MS.

Like many of us KIttyLady, you may have to do a lot of trial and error to find what works best for your MS.
__________________
Jane

Cleverly disguised as a responsible adult!
jprinz99 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (08-24-2013), Erika (08-24-2013), Kitty (08-24-2013), KittyLady (08-25-2013), SallyC (08-24-2013)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Better Morning So Far:-) alisa6290 The Stumble Inn 2 01-17-2012 02:00 PM
CTA in the morning peaches217 New Member Introductions 3 08-29-2009 06:51 AM
What I Saw This Morning april1848 The Stumble Inn 9 04-24-2009 10:27 AM
Anyone around this morning? JD Service & Support Animals 2 03-05-2009 09:24 AM


All times are GMT -5. The time now is 07:02 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.