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Old 08-16-2013, 07:57 PM #3
Erika Erika is offline
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Join Date: May 2012
Location: Canada
Posts: 1,647
10 yr Member
Erika Erika is offline
Senior Member
 
Join Date: May 2012
Location: Canada
Posts: 1,647
10 yr Member
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Remotely similar yes. While I haven't experienced the complete inability to move an area, sometimes when I attempt to that area goes into a full on cramp like spasm. It mostly happens in the backs of my legs when it happens and it can draw the heel of the foot partially or all the way right up to my butt. The pain is horrible and I can't straighten it until the stupid thing lets go. It is about the only time that I'm actually yelling out loud. Good thing I live alone...but poor Willy the dog. He doesn't know what to do then.

When my husband was alive he would force it to straighten by literally sitting on it. Also painful but at least it brought releif quicker.

I think of know what you might be going through with that sort of severe spasticity. Do you feel shocky afterward? I always do and it takes a while for the whole body to settle down. Baclofen helps to prevent it from coming back sometimes, but it seems to run in cycles. I'll have that sort of thing going on for several nights before it goes back to the regular jerky type spasms. I've also had similar spasms in the torso during TM and am wondering if you might be having some of that sort of thing due to lesions in the neck. It does sound somewhat like TM.

I'm sorry that your husband doesn't understand that trying to minimize the experience doesn't make it better. At least in my case, when it happens the body is in full 'flight or fight' survival mode and any attempt to have a discussion right then is going to end badly.
The only thing that is required or desired is a way to immediately get that body area out of its predicament. Anything else is just going to bring out the fight.

Have you been given an intrathecal (spinal) Baclofen. That is about the only thing that works for me if the cycle gets going.

With love, Erika
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