dear ms,
welcome to NT.
it's very plausable that that is the reason.

i was on Copaxone for 10 yrs; sub q. i started having site problems. after a talkd with my neuro i stopped. but, i've never had a flare so he said to stop.

you're lucky to have such a responsive dr who also will see you right away.
let us know what he says.

NurseNancy,

Thanks for responding.

I have done fabulous on Avonex, MRI results show no new lesions and that some of the others had shrunk. I had mild flares through the years but thats it.

My doc said he was septical about the oral meds as they were so new, and I wanted to go that route, but I kept on sticking <grin>.

I can't imagine what he will suggest now...but maybe he will even let me take a mini break. I will post after my visit Thursday.

Welcome! And good luck Thursday with you appointment.

Hi there

Nice to meet you. I was on Beta for eight years - it worked super well for me, but the side effects were just too much to continue with it. After that I went on to Tysabri which has also been wonderful for me, is convenient and I have no adverse reaction to it.

I know it has a really nasty risk profile for PML with some people, but if you are JC Negative it may be worth considering.

I am gearing up for a sudden change in rx. I am contemplating the new oral by Biogen/Idec, makers of Avonex.

After almost 15 years of religiously poking myself, I would like to take a break from needles.

Has anybody had an experience with this drug or know of someone? I did a little research and found that this has the least side effects thus far of the orals available.

I am certain the Neuro will tell me tomorrow that I need to be diligent in getting on to another choice.

I am halfway hoping that he will let me take a med vacation, but doubt it as he is persistant in MS advocacy.

Welcome home MSIndependent..

Welcome to NT!! Lots of info, support, hugs, and laughs here...

I was on Copaxone for 4+years, and finally went off due to site reactions and tissue destruction.

Let us know what your neuro says...I also am leery of the oral meds until they are further along in usage.

I had taken breaks of a month or more before I totally quit Copaxone...maybe you'll go on holiday for a bit and try again...

Anyway, keep us up to date on how things are going

Hi MSIndependent! Welcome to NT!

I have not taken Avonex so I can't give you any advise in regards to it. I know others on here use Avonex and will be able to give you advise.

I was on C for a few years and as time went on I had more and more of the horrible IPIRs. I went off of it and am currently not on any DMD, just managing symptoms with medications.

I'm not sure about the new orals. I've heard good and bad. There is a current thread on here started by KittyLady regarding Tecfidera. I think there is also another thread regarding Tecfidera that is a positive thread. Reading both of them might be helpful to you.

Good luck tomorrow and let us know how it goes.