[chaos]

I assume this is just "fatigue". I tried telling my husband that I've felt like I've had a virus or something for the last couple months - ever since the tremors started. I just can't shake it, no matter what I eat, how much I try to stay active (I've been bike ridding with the kiddo), how much I rest or don't. Saturday mornings are always hard because my body is catching up from the work week. Sunday is usually a bit better.

Got the blood test last week and I'm "fine" (ha ha, right).

This weekend DH went out of town. DD let me sleep until 11ish. Got the kitchen cleaned mostly and got dilly beans canned. Cats were lucky to get fed and watered. Sunday I was able to make rose jelly and make an apple oatmeal bar thing. DD and I ate leftovers mostly. Miraculously washed her gym clothing. I let her bike ride a lot because I didn't have the fight in me to get her to help me out.

I always have to parse out my steps when I'm cooking or doing something needing labor. I can go out and pick the beans, maybe in two trips since I have to stoop and bend, then I put them on the counter. I rest. I then got everything I needed ready, then I rest. Then I put the garlic, dill and beans in the jars, then I rest. Then I finish. I can only things like this on the weekend because I just don't have time after work, when I'm already beat.

I really need *something* to help me out with the fatigue. The MS doc said I don't have it, but purely based on my MRI, not my symptoms. I see the neuro at UCSF in two weeks. I really hope they can give me something to make me feel halfway normal. My PCP was ready to take me off work if I needed it. I can't not work, I am the sole breadwinner, and my job isn't one that could have me leave for a couple months and then come back - there are only 5 of us.

Ugh.

[chaos]

Oh, and the neuropathy has finally invaded my face. My left side is starting to feel like I got shot with Novocaine.

[jnewk]

Originally Posted by chaos

I assume this is just "fatigue". I tried telling my husband that I've felt like I've had a virus or something for the last couple months - ever since the tremors started. I just can't shake it, no matter what I eat, how much I try to stay active (I've been bike ridding with the kiddo), how much I rest or don't. Saturday mornings are always hard because my body is catching up from the work week. Sunday is usually a bit better.

Got the blood test last week and I'm "fine" (ha ha, right).

This weekend DH went out of town. DD let me sleep until 11ish. Got the kitchen cleaned mostly and got dilly beans canned. Cats were lucky to get fed and watered. Sunday I was able to make rose jelly and make an apple oatmeal bar thing. DD and I ate leftovers mostly. Miraculously washed her gym clothing. I let her bike ride a lot because I didn't have the fight in me to get her to help me out.

I always have to parse out my steps when I'm cooking or doing something needing labor. I can go out and pick the beans, maybe in two trips since I have to stoop and bend, then I put them on the counter. I rest. I then got everything I needed ready, then I rest. Then I put the garlic, dill and beans in the jars, then I rest. Then I finish. I can only things like this on the weekend because I just don't have time after work, when I'm already beat.

I really need *something* to help me out with the fatigue. The MS doc said I don't have it, but purely based on my MRI, not my symptoms. I see the neuro at UCSF in two weeks. I really hope they can give me something to make me feel halfway normal. My PCP was ready to take me off work if I needed it. I can't not work, I am the sole breadwinner, and my job isn't one that could have me leave for a couple months and then come back - there are only 5 of us.

Ugh.

Oh Chaos...you are describing my day (except for the beans and the job). do a little, rest some, do a little rest some, more often than not nothing gets finished. Partly fatigue and partly distraction or some other task that needs attention. Even if I feel well when I open my eyes...five minutes on my feet and its over. For fatigue, I have tried Provigil and that gave me a horrific headache. Ritalin...shakes. I have tried Adderall...great except I tried it on my own and doctors are less inclined to prescribe it because its more addictive I think. Anyway, there is a vitamin supplement that I use occasionally for brain fog and fatigue and its L-Carnitine. Which works well for several days and then doesn't so I take it in spurts. its a supplement that apparently boasts that it supports heart health so who knows why it helps with mental fatigue but someone recommended it a long time ago on one of these boards. I hope you feel better soon. take care

[AynaDee]

What you describe definitely sounds like fatigue.

One thing that no one can see or understand, but will rob you of everything.

I have heard that amantedine (sp?) helps with fatigue.

I tried Nuvigil in '10 and resulted in a resting heart rate of 143 beats per minute. AND I STILL FELT EXHAUSTED

But everyone does react differently with the drugs. Your PCP should be able to prescribe one for you.

I find that yoga does KINDA help with fatigue. It seems it only helps for about 20 minutes afterwards, then I am back to bed mode.

I'm sorry you're having troubles with no answers behind them. Lots of people have debilitating symptoms with zero lesion activity in the CNS.

It's crazy how this disease differs from one to another

When you're feeling like you're dragging, lay thy body down and rest!

[SallyC]

Oh Chaos, so sorry. I hope the Neuro can help you, and soon.

[Debbie D]

Sorry you're dealing with one of the more frustrating symptoms...because as we're all told, "You look fine..."

Try to make sure you're drinking enough fluids during the day; dehydration will zap you of energy. Also listen to your body and rest in short spurts if need be.

I've had it all summer as well. I decided to reduce one of my drugs that has made me sluggish in the past; now I hardly even need a nap! The next step is telling my neuro