I was diagnosed 5 1/2 years ago, it has been quite a ride.

You don't need to feel bad for me though. Yes my body cannot keep up with people my age, or even my husband who is seven years older than me. I do have many struggles.

I just try to remember that everyone has struggles, this is just mine.

This is a random disease. So many very weird and horrible symptoms possible. I have a friend who was diagnosed eight years before me who's symptoms are minimal compared to mine. She always tells me she feels so bad for me because I am so much worse than she is. But I try to tell her that she has struggles too, just because mine seem worse to her doesn't make hers any less relevant.

I have a great support system and it makes all the difference in the world for me.

Sorry you are having such a tough go! That boat sounds like a blast though!