Today I got up and thought to myself if I should even go out the door, because just moving is sooooo tough today. I'm currently in Arbys(my wifi hangout) and had to go take a leak like 4 times so far, lol and each time I had to get up and walk there, I was obviously having trouble according to people's eyes looking at me. Oh I felt it too.... I didn't use a stick today(trying to be Annyadee) and found myself having the utmost difficulty pulling my legs forward....like I was dragging my entire leg from just a little past of my hips. I was sloooowww. Felt a little disorianted, but not as bad..... Today has been one of the more difficult times to walk, but not the worst.... Getting sooo sick of this, not knowing how it will be day to day and not being able to plan anything, because of not being sure if I will be able to hold up.

Told dad I wasn't going to the races tonight, because I know I cannot walk that great to get up the grandstand this time plus the entire place is gravel to walk on, not pavement....I'll fall for sure in this shae and I am not letting my dad hold my arm for stability either. It's too embarrassing....for the both of us. I am also worried about having an accident....been having frequency again and although they fixed me so I am 100% dry, I still worry A LOT! At the races, bathrooms are NOT A STONE THROW AWAY! It's just to risky.

I could see my dad was a little disappointed....tonight is going to be a fierce night of racing and cars will be crashing....and he wanted me to be there. Last week I managed to go, but asked to leave before the last two features...I was dead tired and couldn't stay awake. I'm so tired of this....and I can see some of the people I know and love are tired of it too. I make plans then break them the last minute and get all sorts of mad, because I really wanted to go or do, but literally couldn't.

The good news though is that I got a radio control boat (traxx Spartan) and it does like 50 MPH and big. Lots of fun and addicting, plus I all I have to do is sit on my *** on the beach and play.

Later peeps....don't worry...I'm fairly happy and feeling positive, just a little frustrated today and all that.

I hear you about the cancelations. After a while you stop even trying to make plans, but that leads to isolation. You've got to look for relationship with folks who understand the problem. You know, like us.

I hear ya Eric and at your young age, I am sorry at your pro
-gression. It sucks the big one!! When I was your age, I had
a hard time keeping up with my 70 yr old Mom and now that
I'm 70...****, just forget about it.

Do some OT, Have some LDN, try to keep walking, as long as
you are able. I chose to stop walking, after DH died, was alone
and afraid of falling. I got onto my scooter and now, I must do
OT every day just to keep legs strong enough to stand/transfer.

Love and good wishes for you.

My dad is now 68 and my mom is 62 and I am 38 having trouble keeping up with them! OMG! I wish those teenagers would slow down a little!

I won't lie...it is progressing more than I thought it would and the last MRI was ho-humm...not great at all. I haven't rode the bike in a while, but manage to still get out on the raft. I get out as much as possible, pending how friggin tired I am or factoring in the heat....and other crap. Like to day was fine...cloudy, cooler and tolerable... didn't feel too bad at all.

I hear you Eric, I am 28 and 70 year old people can out-do me any day. I do as much as I can, but it seems to be less each day.

I wish I could say something to help, but I can only relate. Hope you feel a little better soon.

I feel so bad for you, cause at least I had 10 more years without any MS trouble..All began at 35 or so. I've also met a 24 year old dude that is power chair dependent....can't do much of anything due to how bad his MS is.

MS to me is so random...doesn't care what age or anything, 20's 30's 50's....it doesn't matter.

I was diagnosed 5 1/2 years ago, it has been quite a ride.

You don't need to feel bad for me though. Yes my body cannot keep up with people my age, or even my husband who is seven years older than me. I do have many struggles.

I just try to remember that everyone has struggles, this is just mine.

This is a random disease. So many very weird and horrible symptoms possible. I have a friend who was diagnosed eight years before me who's symptoms are minimal compared to mine. She always tells me she feels so bad for me because I am so much worse than she is. But I try to tell her that she has struggles too, just because mine seem worse to her doesn't make hers any less relevant.

I have a great support system and it makes all the difference in the world for me.

Sorry you are having such a tough go! That boat sounds like a blast though!

I turn 62 in January. At my age my mom was recovering from colon cancer surgery, having just got her ostomy reversed. And then she was off, traveling everywhere from Cape Cod to Hawaii. She even did a little hiking with me when she visited years later. I am lucky if I get to see my grandkids 3 or 4 times a year, who only live 3 hours away, because travel and pain control are so difficult. Staying the night is a nightmare, as the guestroom is on the second floor, and the bathroom is not conveniently arranged for all my G.I. madness. All I want to do is be a grandma . . . I have even given up hopes of taking my grandson on his first hike on Rainier. I just want to enjoy my grandkids, and I am often too out of it from pain control to even do that . . .

Okay . . . didn't mean to hijack thread. Personal pity party over. We are never prepared to meet the emotional challenges that come with the physical ones . . . and I think they are the more difficult of the two.

I think we all need that hug right now! Sorry you're hurting, physically and emotionally!

((((((Lefthanded))))))