It's OK Ami, most of our Neuros think that all of us MS women are
hypochondriacs and a little crazy.

My neuro on the other hand, tends to look at me with a puzzled expression when I walk in there because my test results apparently paint a picture of one who is far worse off.
Just goes to show how one feels and is, does not always agree with what the test show.

Make sure your doctors know what your symptoms are despite what the test reveal. I think that doctors sometimes only see their patients as a collection of data and don't take the time, or make the effort to really listen, so that they get to know us; or how symptoms impact our lives.

It will help your doctors to help you if you not only describe your symptoms in detail to them, but to also let them know how those symptoms impact your life.

Wishing you well.

With love, Erika

I've never had a neuro who wanted to know what I thought of them, have you?

Vicky

My neuro takes my symptoms into account as a barometer much more than what the MRIs show. Lucky I guess...

My last Neuro was a young and flippant little guy. Not to my liking,
as a Doc, but a fun guy as a person.. His idea was always, "we
handle what comes to us, no sympathy here".

I feel like every doctor I go to take the first thing they hear or find and say "that's it!" and brush off anything thereafter. I have been told I hurt due to low potassium, neuropathy, high sugar (125), I have had a virus or flu a million times, arthritis, stress, menopause that happened 7 years ago, bad posture, wrong shoes, low vitaminD, high white blood cells, too much or not enough walking. Try this med or that med-all they do is make me more tired and useless.

With many people at this point, I might say that it could be good to take a time out from the search for 6 months or so and then come at it again. That is not a good tactic here because of you reduced mobility and pain.

I would correct those things that can be corrected- the Vit. D, for instance, the low potassium (Low potassium and elevated sugar can be SE's of prednisone).

You know that you are not useless- you are not well at the moment.
ANN

Thanks Ann. All of those blood things have been corrected or didn't even show up on subsequent tests. But when one did the doctor at the time was "sure" that was the problem. It's all so frustrating. I have tested for Lyme like 8 or 9 times! It's one of the reasons I didn't want mt bones looked at first because I know there is slight arthritis and I knew that would be the thing they'd grab and say is my pain. As far as I know arthritic pain ois more a constant ache in a joint not these always moving, never ending spasms that I have. The MRI that showed all that damage in my neck caught me totally off guard. It's still hard to believe because from the waist up my only complaint is minor weakness. Yet the doctor says that alone makes me permanently‎ disabled?
I haven't accepted any diagnosis yet‎ so this is turning into a long, expensive, painful journey.

Well I've given it a full week and at first the nuerontin seemed to offer some hope but as the week has gone on it's clear this one isn't going to work either. Oh how I want some prednisone!

Ami-

A week is probably not long enough to evaluate a new drug.

ANN