Can anyone help me please? Any ideas???? Here are most of my symptoms:
constant, moving pain and tightness in legs
burning pain in hips and lower back sometimes
weakness in legs-can't ever walk for long
lightning pains in ankles-almost all of the time
cannot stand still for any period of time
not lifting feet high enough (though I think I do) going up stairs so I trip
sitting hurts after a while and then walking hurts after a while so have to sit
tightness around ribs and shortness of breath sometimes
weak but not painful arms
hands often lose grip and I drop things a lot
dry eyes, dry mouth sometimes
can't sleep from pain because something always hurts
total, complete lethargy, feel like I have no energy at all
Doctors say there is NOTHING wrong with me-one today told me it's STRESS!!!!!!!

Hi Ami. So sorry for all your pain. Have you seen a Neurologist?
I suggest you do.

It could be fibromyalgia-I was dxd with that in mid 80s...later dxd with MS in late 08...

Are you on any meds for this? If it's fibro, Lyrica is usually what docs prescribe. Drugs like zanaflex or baclofen are precribed for spasticity.

Make sure you write down your symptoms with dates of onset and dissipation for your doc.

And be your own advocate-yes, stress increases symptoms of both of these diseases...but still symptom management through exercise, stretching, and rest and good nutrition are ways to help also.

Keep us informed and don't give up-keep digging for answers, even if you have to go to a neuro or rheumatologist.

Yes I have been to to both of those doctors. Blood work came back ok. Nerve tests-normal. The MRI of my neck didn't come back but nobody seemed to care.
One of them gave me Cymbalta but I can't take it and go to work-it made me very dizzy. I have been taking Prednisone and it works great but have been told I can take it no longer. They told me yesterday to take CoQ10 instead. Really???

Have you had your Vitamin B12 levels tested? It has been suggested that levels below 400 may produce symptoms of deficiency in some individuals.

Symptoms of Vitamin B 12 Deficiency - YouTube
http://www.youtube.com/watch?v=p0da1xrELcA

Vitamin B-12 warning: Avoid cyanocobalamin, take only methylcobalam
http://www.naturalnews.com/032766_cy...amin_B-12.html

Hope that you get some answers and feel better.

With love, Erika

Ami-

Welcome to NT.

Regarding the MRI of your neck: You paid for it and endured it. Get the report.

ANN

Hi and welcome to NueroTalk. Boy, if I had a dollar for every doc that told me "its just stress" or "its all in your head" or "there's nothing wrong with you" I'd be a VERY rich woman today. I cant sit here and tell you if you have MS or not, but the thing I can tell you is to get yourself to a MS neuro ASAP!

Only a neuro who specializes in MS can work with you on this. That was my mistake many years ago. I just saw neurologists. None who specialized in MS. I got the typical, "she has depression, there's nothing else wrong with her" and was put on anti d's and sent home.

That happened for a long time until I went to an MS neuro who did the right testing and the right MRI's WITH contrast and really looked at me and did the right kind of in office testing.
Of course your stressed. Duh!! We all are when there's something wrong and we don't know what it is, especially if we fear its MS. There's a lot of things to be ruled out first before a dx of MS can be confirmed, and a lot of things to fall into the McDonald criteria before a dx can be confirmed.

It can take a long time, or it can take no time at all. Big thing is, you need the right kind of doctor. Sorry this is so long, but you need to be steered in the right direction when you are just starting out. Be patient, don't give up, don't let them tell you its all in your head! Its a cliché, but you are your best advocate. Only you know your body, only you can speak for yourself. If the doc isn't listening to you, move on.

There's a lot of warriors here with a lot of experience and a lot of hugs to go around. Don't ever hesitate to come and talk, or vent or just need hugs. We are here for you.

Thank you so much for that. Sadly my insurance requires referrals and until I met this last dr. (because my primary was out) nobody has really listened to me. It seems I get half through my symptoms and each dr. grabs something and yells "eureka! I've got it !" I feel now like they are just throwing meds at me so I'll be drugged and finally shut up.
I am at somewhat of a standstill again because my insurance company is not approving the MRI of my lower back. The dr. is fighting it but who knows? I don't even know if there is a ms specialist neuro that my insurance would cover. Either way I do have an appt with the primary on the 9th. I have to get some MORE bloodwork done before. I feel like someday I'll be drugged, in a wheelchair, with many holes in my arms and still no answers.
As you can tell I'm a little down these days. I feel like life is going on all around me but I don't have the fortitude to participate.

((((((Ami))))))

My insurance will not pay for the MRI of my back. I'll never get a diagnosis or the right medicine. I am so depressed.