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Hello :-) thank you for the warm welcome!
OK so I need some input and possible encouragement on what direction to go. Almost a decade ago I started having some unique symptoms that my PCP thought showed concern for MS testing. Was told not diagnosable as MS at the time. Flash forward 5 years... Hadn't had much symptoms for some time, got really sick (pneumonia) and the original symptoms were back. In that time I have been bounced between neurosurgeons (I have a non-active pituitary microadenoma) rheumatologists, gastroenterologists and hematologists. They all say the same thing "there is definately something wrong, but...." Because I'm not defineable in their specialty i get shuffled along. (The one thing they all say is it is autoimmune) my PCP keeps coming back to MS. Over the past 3 years everytime I get sick with a cold or flu I have a 6-12week period where my body just has a fit. Here is what I have... Fatigue so bad I can't function. It's worst in morning and eases up in the early afternoon. Numbness and itching in face, arms, chest and hips/thighs Walking/Balance/Coordination Problems... I look like I'm drunk Bladder Doesn't work right- horrid urge and incontinence Constipation Vision Isn't quite right and get bad eye aches in left eye only Dizziness and motion sickness Pain in my arms, neck, back and legs. It gets crazy at night or if I'm tired. Electrical zaps! Cognitive Dysfunction - I'm so out of it I almost can't function mentally some days Emotional Changes - zero patience! I have never been a depressed person but this go round I'm a wreck Speech issues... I go to say one thing and either gibberish or a different word comes out. Choking and swallowing issues Headache all the time Tremor that comes and goes. They run my blood every time and the results are always the same... Very low vit D Elevated Eosinophil Decreased nutriphils I get a pituitary MRI annually and because there are no visible lesions I get told it's not neurological. My question is.. Does anyone know if pituitary MRI is the same as brain MRI that would check for lesions (no they have not checked cervical) Do I push for different MRI...how about a new neuro? Am I just losing my mind? So tired of feeling out of control I appreciate the support and input! |
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