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#1 | ||
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New Member
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I have an appt with the hematologist in 2 weeks too! My EOS level is at 28%. I have done some reading and have found some really interesting stuff about studies in the UK, Germany, Sweden and Canada that have shown in a certain population of people with MS their eosinophil level spikes during a flareup.
I had a bone marrow test last year and all it showed was my EOS level was at 21% and no I didn't have blood cancer. I am doing some research on the MS center at Mercy hospital in Sacramento, turns out it is covered by my insurance so I my just saddle up and head that way if they keep jerking me around up here. |
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#2 | |||
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Grand Magnate
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you sound very level headed. please don't give up getting the appropriate answers.
it can be very surprising when you get copies of your dr's notes. i've often found inaccurate and outright wrong info in my notes. that's why i'm such a stickler for telling people to start their own medical record and get copies of reports and dr's visits.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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#3 | ||
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Member
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Talking about inaccurate notes, my hemo at Mayo wrote in his notes that I was a descendant of Mary Queen of Scots. I explained that this was inaccurate, that the truth was that Mary and I had common ancestors. He didn't change it, just went on writing fast, because he had a lot to cover in a short time. I realized that these notes might make some one else reading them think I was delusional.
However, I have since then actually found my foremother, Eschyna de Molle, on the Stewart tree...very interesting material that was hard to find, made me feel like I'd completed a research thesis. So Mary Queen of Scots actually is descended from a common family tree as I am, and we both have or had Porphyria. |
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#4 | |||
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In Remembrance
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Great story Mariel...thanks for the reality and the giggle..
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ Last edited by SallyC; 10-09-2013 at 01:51 PM. |
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"Thanks for this!" says: | Mariel (10-11-2013) |
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