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Old 10-08-2013, 12:32 PM #1
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Default my spinal tap results

I didn't see anyone mention Myelin Basic Protein.
These results are MS in the worst degree for me at the onset.
Years & many meds later i'm much better and haven't repeated spinal tap.
Always get copies of bloodwork & mri's!
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Old 10-08-2013, 05:05 PM #2
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Thanks, NurseNancy. I always try to remind myself that doctors are human too, but sometimes it's hard not to get mad at some of them. I've been told for 5 years that I have idiopathic neuropathy, and the only reason I got the earlier MRI & lumbar puncture is because I kept asking them for it, not because any of them thought of testing for this on their own. I saw in some notes that there "might be some weakness" in my legs, or it could just be "lack of effort by patient during examination." Arrrgggh!

Eddie, thanks for your reply too. I'm glad that you're doing better with meds. I can't find the kind of protein you're talking about. I see this one, and it is high, but I don't think it's the one that you mean:

Component: Protein CSF
Standard Range: 15-45 mg/dL
Your Value: 53

I think I'm going to call the Cleveland Clinic tomorrow. It's been a few weeks (9/13) since I got the lumbar puncture.
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Old 10-08-2013, 05:10 PM #3
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Oh, Nancy, I just reread your post about the oligoclonal band #. Mine was 8. It sounds like that's pretty indicative, hunh?
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Old 10-08-2013, 06:11 PM #4
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Joan, did you look at images I posted above?
Get a copy of yours and check against mine.
Heck I wish all of you would post results including mri's to help us all understand like good neuros.
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Old 10-09-2013, 07:20 PM #5
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Eddie, yes, I looked at your images. As I said before, my lab results do not contain a Myelin Basic Protein value, only the one that I posted previously.
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Old 10-14-2013, 07:04 AM #6
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this may help anyone understand your own test results a bit better:

http://www.nlm.nih.gov/medlineplus/e...cle/003428.htm
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Old 10-15-2013, 09:16 AM #7
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Cleveland Clinic is supposed to have an excellent MS center, right?

Make sure to get and keep copies of all tests, MRI discs, etc.

Sounds as if you are getting some investigative testing done to get to the bottom of what's up.

And if your doc dismisses you, let him/her know that is NOT professional, then find another. I HATE docs who do this. I finally got a referral from someone here to a neuro who specializes in MS. This is probably most important for all of us with neuro symptoms that turn out to be MS.

Keep us up to date...
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