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Old 10-21-2013, 08:01 PM #11
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Quote:
Originally Posted by KittyLady View Post
Asap he wants a spinal MRI and he wants me to have the baclofen box inserted. I agree.
Kitty why the baclofen pump? Pills didn't work? I take 7 of the 20mg per day.
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Old 10-24-2013, 06:27 PM #12
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Kitty why the baclofen pump? Pills didn't work? I take 7 of the 20mg per day.
My body seems to have gotten use to the pills and so they are not working as well. That's why he wants the pump. Im all for it. I'll try anything to get this pain to go away, even for just one day.
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Dx RRMS April 1992
Yearly flares from 92 to 11
MS induced seizures 2002
Flare Oct 2011
Flare Dec 2011
Left disabled after 2 previous flares
Betaseron '02, Copaxone '12, Tecfidera '13
(allergic reaction to all)
No longer taking any MS therapy meds
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Old 10-24-2013, 06:28 PM #13
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Quote:
Originally Posted by EddieF View Post
Kitty why the baclofen pump? Pills didn't work? I take 7 of the 20mg per day.
Quote:
Originally Posted by ANNagain View Post
KittyL,

I am sorry this did not work for you. I have forgotten your Medicare date- is it in Feb 2014? I wish you a peaceful early winter.

ANN
Yes Ann, its Feb of 2014
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Dx RRMS April 1992
Yearly flares from 92 to 11
MS induced seizures 2002
Flare Oct 2011
Flare Dec 2011
Left disabled after 2 previous flares
Betaseron '02, Copaxone '12, Tecfidera '13
(allergic reaction to all)
No longer taking any MS therapy meds
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Old 10-24-2013, 07:07 PM #14
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Ok back to thread topic Tecfidera.
Kitty what was/is your WhiteBloodCount? How much did it change from start to end of taking Tecfidera?
Mine is now 11 from a constant sky high 15-17. I must say it IS working in that respect thank goodness.
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Old 10-25-2013, 04:12 PM #15
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My neuro never took my blood count. Said it was not necessary. I said I thought it was from everything I had read and from the FDA website and all, and he said no, was not necessary. I stopped because of all the side effects. Even with the preventatives to the side effects, I was still getting some of the side effects, so I said I had enough. It was my second time trying the drug, so it was a mutual NO between me and neuro.
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Dx RRMS April 1992
Yearly flares from 92 to 11
MS induced seizures 2002
Flare Oct 2011
Flare Dec 2011
Left disabled after 2 previous flares
Betaseron '02, Copaxone '12, Tecfidera '13
(allergic reaction to all)
No longer taking any MS therapy meds
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Old 10-25-2013, 07:58 PM #16
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Quote:
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My neuro never took my blood count. Said it was not necessary.
I'll speak on behalf of i'll say most by saying your neuro is a bleepin bleep bleep. What an idiot.

Ask your regular doc to order a cbc monday.
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Old 10-27-2013, 08:21 AM #17
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I don't have a regular doc. I have no insurance so I don't being able to keep my neuro was a blessing. He only charges 75.00 a visit. Maybe I'll ask him for the blood test. Do you think it would really matter? I was technically on the drug for only a month. I was on for 2 weeks had a bad reaction then he took me off for 3 weeks then back on for 2 weeks and the same reactions even with preventative meds.
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Dx RRMS April 1992
Yearly flares from 92 to 11
MS induced seizures 2002
Flare Oct 2011
Flare Dec 2011
Left disabled after 2 previous flares
Betaseron '02, Copaxone '12, Tecfidera '13
(allergic reaction to all)
No longer taking any MS therapy meds
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Old 10-27-2013, 07:53 PM #18
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Hi. Well, if it was me i'd want to know because i'm trying hard as I can to hold my MS level where it is for as long as I can, so any little bits of info are welcome. Curious if it effected your blood counts and how. Surprised your neuro wasn't curious as well..and you. I'd go for it if I were you. Test might cost same as a neuro visit. For your own piece of mind/info anyway. Maybe your count was low and made you feel poorly. Nice to know how all them cells are doing once in a while especially if weak, tired ect.

ed
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