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Old 10-22-2013, 10:47 AM #1
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I'm already on gabapentin for TN, its been a miracle drug for me.

I also had the paresthesias with the attack that got me my diagnosis. That's different than this though. With that, I would sit down on cold tile and it would feel like I just sat on a pit of lava. It was really weird. Thankfully that faded.

You're right, this seems completely unrelated to the environment. It seems perceptual, but then I sweat, shiver, etc. Who knows? It is just so irritating because its impacting my sleep. I'll layer up, fall asleep, and wake up in sweat. Take the layers off, go back to sleep, and wake up shivering. There's just no winning since its just swing from hot to cold to hot, and sometimes both at once! I could deal with it fine if I could just sleep through it. Sigh...

I have a long scheduled neuro appointment early next month. I'm definitely going to bring this up.

Quote:
Originally Posted by ANNagain View Post
Yeti-

The answer is yes, I have this problem- long standing. Polar fleece on and off as well as socks and gloves/fingerless gloves-and I am not just talking winter! There is no winning this except to have layers. I even have a hat for bed. What ever works, eh?

That is a temperature thing. Not related, it seems, to either the environment or my real body temperature. It is perception.

There is also the perverse paresthesias that seem right on the edge of burning hot and icy cold. Sometimes an icy hot! Maddening.

Many here have either or both of this temp related situations. For the first, invest in light weight fleece and for the second, endure or if you can't stand it, talk w your Neuro about some help (often gabapentin).

Needless to say, medical causes should be looked at as well.

Keep warmish,
ANN
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Old 10-23-2013, 02:52 AM #2
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Quote:
Originally Posted by yeti View Post
I'm already on gabapentin for TN, its been a miracle drug for me.

I also had the paresthesias with the attack that got me my diagnosis. That's different than this though. With that, I would sit down on cold tile and it would feel like I just sat on a pit of lava. It was really weird. Thankfully that faded.

You're right, this seems completely unrelated to the environment. It seems perceptual, but then I sweat, shiver, etc. Who knows? It is just so irritating because its impacting my sleep. I'll layer up, fall asleep, and wake up in sweat. Take the layers off, go back to sleep, and wake up shivering. There's just no winning since its just swing from hot to cold to hot, and sometimes both at once! I could deal with it fine if I could just sleep through it. Sigh...

I have a long scheduled neuro appointment early next month. I'm definitely going to bring this up.
Maybe buy an electric blanket that you can put on a timer so it goes off and on? -- might be hard to coordinate with chills and sweats. Bit it's a thought!
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Old 10-23-2013, 02:55 AM #3
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When I first got MS I was constantly running low grade fevers all the time. They were confused because the docs didn't think that was a typical MS system. It was so unpleasant. My husband could immediately tell when I was running a fever because I just slowed down like molasses. That went on for a couple of years. But now they appear to be gone! Yeah!!
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Old 10-23-2013, 10:50 AM #4
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Natalie. me too. I still run low grade fevers, for no other apparent
reason. In the hospital, after my fall, the Nurses noted a LGF
almost every day.
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Old 10-24-2013, 06:43 PM #5
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OMG, I just thought my body was set on wacko! No, its just set on MS! My house can be set on 72 and Im freezing, later on I'll check the stat again because Im burning up and its 70, and Im like !! My hands and feet are constantly like Ive been keeping them in the freezer, even in the summer. Oh, lets not forget the tip of my nose, arctic cold, cant explain that, but my nose decided to get in on the fun. DH likes to make fun of that one, its my one freebee I give him
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Old 10-24-2013, 07:43 PM #6
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Quote:
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OMG, I just thought my body was set on wacko!
You are very funny but correct!

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