So you got the steroid treatment before you went on your trip?

I am so glad you did the trip though...I always berate myself for limiting the kind of life my husband is living due to my limitations. But, honestly, if he was the one with MS, I'd be right by his side too. I have to constantly remind myself that he chooses to be with me, and care for me, because he loves me.

So I am trying more to be more willing to go out, even when I don't feel well, and am forcing myself to look at my life in more positive ways. The symptoms get in the way, but as long as I can breathe, I'm going to do my best to do as much as I can, even if it means only sitting with my dog on my lap due to fatigue.

Thanks for sharing so much with us...I learned a lot from you!!

hi Debbie
Yes, my rheumatologist started me on Prednisone 40 mg x 3 days, 30 mg x 3 days, 20 mg an so forth, then 10 mg maintenance dose daily. On the 2nd or 3 rd day I felt like a "new person". But as soon as the tapering dose started, my symptoms came back. She said to stay on the 30 mg for 2 weeks, then I started tapering. Now I am done with the Prednisone, and I feel really sick with the symptoms.

This all make me think, that I responded to the steroid, there must be an inflamation. And I think the inflamation is in the bloodvessels and it is attacking the nervous system.
But, as you said, we have to live every day as if it was our last day. I will remember that. It is hard though, when the push comes to pull, sometimes we still get misarable. I know I do.
I think I have a couple of weeks ahead of me now with some diagnostic tests
It was very nice to hear your comments regarding how your bad days with symptoms etc and relationships.
I know, that if I feel down and under it is very hard to go out.
I had my sister-in-law call me yesterday, asking how I was feeling. (She also have neurologicalk problems with neuropathy)
She said to me: Always remember, God gave us life. God gave us every single day for us to use. God gave us free will to decide how we willk spend each of those days. So, she said, we do not have tomorrow yet. So use this day, praise him every morning, and thank him for this day,even if your body is aching.
Yes, but it becomes hard sometimes.

God bless you, and thanks for your patience to listen to me, Debbie
All the best wishes for you

Synnove, I had that internal vibration feeling for a couple of months years ago--about 30 years ago. Like Debbie D, I have some cognitive problems and sometimes I don't get those old dates right, and I certainly am a goofus using "extra" programs on a main program like this forum. I did not yet have an MS dx when I got that internal vibration, so I was treating it with Choline capsules from the health store. I can say that these did work to alleviate the problem, and as long as I was on them, it was better. But the symptom went away, and I eventually stopped Choline.

I am used to treating some symptoms with supplements, because I also have Porphyria, which makes me unable to metabolize some drugs (not all, but probably the majority).
So Choline was suggested by some source as a way to deal with the internal vibrations, but I do not know who suggested it.

I too have vascular problems in the feet--I guess it could be called vasculitis, but the doctor just calls it Erythromelalgia. It comes from my other disease, Polycythemia Vera, in which I produce too many or badly formed red cells and platelets. These seem to crowd into the wee toes, where the vessels are small, and cause a pain in the nerves, so that my feet are the most painful part of me. However, right now I'm doing better with this, possibly because my red cells have stopped going up and also the platelets have stopped going up, even though they are around twice normal in number. My foot pain is way down. So I can do the housework and shopping without falling on the couch to rest too often.
I also have Porphyria, which is a disease in which the nerves are attacked by excess porphyrins in the blood, which happen due to a defective enzyme (very long story). So some of my neuropathy is due to that. I had just numbness when I had only Porph and MS, and now I have pain. But as I said, better today. 3 years ago I fell down stairs and broke my kneecap due to the numb feet on the stairs, so I watch VERY carefully where I put the feet.
I am on the Swank MS diet for about 28 years and I recommend it as a help to many of us, not to all, but many.