[amiallison]

Can anyone help me please? Any ideas???? Here are most of my symptoms:
constant, moving pain and tightness in legs
burning pain in hips and lower back sometimes
weakness in legs-can't ever walk for long
lightning pains in ankles-almost all of the time
cannot stand still for any period of time
not lifting feet high enough (though I think I do) going up stairs so I trip
sitting hurts after a while and then walking hurts after a while so have to sit
tightness around ribs and shortness of breath sometimes
weak but not painful arms
hands often lose grip and I drop things a lot
dry eyes, dry mouth sometimes
can't sleep from pain because something always hurts
total, complete lethargy, feel like I have no energy at all
Doctors say there is NOTHING wrong with me-one today told me it's STRESS!!!!!!!

[SallyC]

Hi Ami. So sorry for all your pain. Have you seen a Neurologist?
I suggest you do.

[Debbie D]

It could be fibromyalgia-I was dxd with that in mid 80s...later dxd with MS in late 08...

Are you on any meds for this? If it's fibro, Lyrica is usually what docs prescribe. Drugs like zanaflex or baclofen are precribed for spasticity.

Make sure you write down your symptoms with dates of onset and dissipation for your doc.

And be your own advocate-yes, stress increases symptoms of both of these diseases...but still symptom management through exercise, stretching, and rest and good nutrition are ways to help also.

Keep us informed and don't give up-keep digging for answers, even if you have to go to a neuro or rheumatologist.

[amiallison]

Yes I have been to to both of those doctors. Blood work came back ok. Nerve tests-normal. The MRI of my neck didn't come back but nobody seemed to care.
One of them gave me Cymbalta but I can't take it and go to work-it made me very dizzy. I have been taking Prednisone and it works great but have been told I can take it no longer. They told me yesterday to take CoQ10 instead. Really???

[Erika]

Have you had your Vitamin B12 levels tested? It has been suggested that levels below 400 may produce symptoms of deficiency in some individuals.

Symptoms of Vitamin B 12 Deficiency - YouTube
http://www.youtube.com/watch?v=p0da1xrELcA

Vitamin B-12 warning: Avoid cyanocobalamin, take only methylcobalam
http://www.naturalnews.com/032766_cy...amin_B-12.html

Hope that you get some answers and feel better.

With love, Erika

[ANNagain]

Ami-

Welcome to NT.

Regarding the MRI of your neck: You paid for it and endured it. Get the report.

ANN

[NurseNancy]

hi and welcome to NT,
i agree with getting the report of your mri. you may have to go there and sign a release. ask for a copy of the disc also. any dr in the future may want to see it.

start collecting a medical file on yourself. ask your drs for copies of your test results. it will all be helpful in the future.

i absolutely hate to hear when drs tell their female pts their problems are due to hormones and/or stress. that's a total cop out! it's a replacement for drs doing their jobs and being diagnosticians. can you tell i hate that????

i am all for you getting another opinion from another neurologist or MS specialist. i don't know if you have MS but i can relate to some of your sx's (symptoms).

your dr didn't want an mri of the brain? it's part of the CNS (brain/spinal cord). did they do it with contrast? (start an IV and give you medicine).

the sx journal is also a good idea. i can help your dr see your sx's and a timeline.

please stay in touch with us.

[amiallison]

Thanks everyone. I got the results from my MRI of my neck. It says I have herniated discs and prominent stenosis from c4-t1. While my neck can be stiff I never have neck or arm pain and seldom have headaches. If there were lesions would the report call it that?

[Erika]

Yes, While herniated discs and/or stenosis are no fun either, it is probably better than MS.

With love, Erika

[EddieF]

C4-T1 do a search for "Dermatomes" you'll find charts showing what levels effect where on body. Do it.

MRI of c-spine but what about the head??? If they didn't scan brain have them do so asap & get it on disc.

Good luck!