[Lynn]

Well, hot weather starting to set in here, bushfires tearing through my state, homes destroyed, temperature gauges starting to blow - not good news for spring.

All is ok where I am, but just wondering if anyone ever feels like I do right now. It is almost like my left side belongs to someone else. I can feel it as heavy, sometimes painful, kinda numb, but it doesn't feel like it belongs to me..

Think I'm crazy, but you know how your body is one unit? My left arm and leg are an alien right now, even typing is taking a long time and I have to fix up all of the left hand keystrokes.

Sounds nuts - just venting, and not good when you are left-handed and a typist/business administration teacher.

[SallyC]

I know per-zactly -LOL, how you feel.

Sometimes, I actually can't feel or find my left foot. I have to look
for it and position it. That is not all of the time, only when I'm very
tired or have been sitting in one position too long. It's kinda scarey!!!

[Debbie D]

Sorry, Ann, that you're experiencing this...so many different symptoms for one disease makes it a crazy one to deal with.
Hope you feel whole soon

[jnewk]

Originally Posted by Lynn

Well, hot weather starting to set in here, bushfires tearing through my state, homes destroyed, temperature gauges starting to blow - not good news for spring.

All is ok where I am, but just wondering if anyone ever feels like I do right now. It is almost like my left side belongs to someone else. I can feel it as heavy, sometimes painful, kinda numb, but it doesn't feel like it belongs to me..

Think I'm crazy, but you know how your body is one unit? My left arm and leg are an alien right now, even typing is taking a long time and I have to fix up all of the left hand keystrokes.

Sounds nuts - just venting, and not good when you are left-handed and a typist/business administration teacher.

I completely get what you are saying. Its a weird disconnect/numb/out of body kindof not-feeling.

I've heard about the fires there on the news. I'm glad you are in a safe place and I hope you are able to stay somewhat cool.

Feel better and vent away anytime
janet

[AynaDee]

lynn

MS is so stupid. I have felt that way for quite some time now.. the insides just don't 'sync' up as I refer to it. The split feeling sucks and not being able to coordinate both sides together is extremely frustrating.

I had the right side of my abdomen painfully numb about 2 years ago.. That came back again this last summer, this time adding the left side to the equation (just wasn't as numb as the right side). That lasted all of summer (just recently stopped being that painful numb).

I feel like the disconnected feeling is here to stay (with me at least) That's something that never went away after my first dose of 'roids after diagnosis.

I am so glad you are safe from these fires! That's scary stuff.

Do you think the heat where you are at is causing the painful numbness to worsen?

I hope that these things will let up on you soon..

[tkrik]

Originally Posted by SallyC

I know per-zactly -LOL, how you feel.

Sometimes, I actually can't feel or find my left foot. I have to look
for it and position it. That is not all of the time, only when I'm very
tired or have been sitting in one position too long. It's kinda scarey!!!

I get this a lot in my left arm and left leg. It's actually called proprioception. It's not knowing where ones body parts are in space and time. I lose mine all the time and constantly have to look to make sure the limb is not just hanging there doing nothing. It functions ok, but I lose track of it.

Lynn - My fingers can have a mind of their own when typing. Letters get all mixed up and I have to make lots of corrections. It's not all the time and only happens occasionally but it is annoying. I also have where I'm going to type a word and a totally different and unrelated word gets typed. It's so weird. MS is full of funny surprises like that.

[Synnove]

hi Lynn
I hope you are able to stay cool. How long is the summer with the heat in Australia? Pretty much as the opposite from US I guess.
I live in Florida, and we have long summers with sub tropical temperatures.
Funny, but I do not really mind the hot temperaturs, as long as I a cool place
to go to I do like our mild winters.
I still do not know if I hav MS, might know soon, but I too have symptoms where one side is worse than the other. I get terrible paresthesia especially in my right arm. On days that the parestesia has been at it's worse, and towards the evening, sometimes my right arm has tremors. A couple of times lately, my right arm felt heavy, only for a few seconds or a minute or so. I know I should have gone to the doctor, ( they say I have TIA) But I said to my self that is was just from the neuropathy in my arm.
My neurologist has taken me off the Plavix, and I was so glad for that. He said he might put me on a different type of antiplatelet med, if I have more symptoms.
Sometimes when my paresthesia gets bad, I feel the need of a masage of all the muscles, just to feel my musles.

[Lynn]

Hi everyone

Thanks for your replies - MS, like life, is like a box of chocolates - you never know what you will get (only someone else usually gets the nice ones).

tkrik - the proprioception thing - I used to have major problems with that just around the time of my diagnosis, but it is the same kind of thing - knowing on a logical level where things are - or are meant to be, but having to check all the same, cause you might have your leg/arm all twisted up and not even realise it.

Synnove - good luck off the Plavix - if I was on that it would kill me. My platelet count runs at around 50 k (normal is 150-500 k). I hope they find a better alternative for you. I hope you get 'normal feeling' back that you have lost.

AynaDee - I don't think it is necessarily the heat, although that doesn't help, stress, fatigue and all the other usual suspects play a part as well. The bushfire crisis is over for now, although lots of people have lost their homes which is so sad.

Janet and Deb - thanks for letting me vent, thankfully I was well out of danger and things have cooled off a little (for now)

and

Sal.....

you better PM me your address.....

so if I find your left foot, I can send it back to you

[Erika]

Sal.....

you better PM me your address.....

so if I find your left foot, I can send it back to you

Good one, Lynn
Glad that you are doing better and have 'cooled off'

With love, Erika