Just got back from seeing him a little while ago.
Like Sally said, "I want my Mommy....Waaaaaaaaaaa!!!"

Mulling a few things over, as I now have some decisions to make.
Will post on another thread a bit later.

With love, Erika

Erin, it is cruel that you have to go to downtown and walk to the building because of the change in your insurance.
I've found a weirdness in my car/home insurance. If you even report an accident, and do not collect because the damage is below your deductible, it goes as a black mark against your record, which is assessed when your review comes up, and could cause insurance cancellation. Never report an accident if it's minor enough so that your deductible will cover it. In my case, I drove my car (very slowly) into a garage door which was coming down intstead of going up. It turns out I don't need a new door, just a $100 brace on the lower door. (the repair guy was honest).
We must never assume insurance agencies are our friends. I thought they were "neutral". I have talked to the execs and they say they will "withdraw" the claim, but can I believe them?
Erin, maybe your new doctors will shed some additional light on your condition, which could be an unexpected bonus of having to change. I hope so!

That's a really good point Mariel,
A new doc might indeed end up being a positive, rather than a negative thing. i hope so too Erin.

With love, Erika

My dad was the one who reported the damage to my car. I didn't even know it had happened. I was home asleep. I woke up, and there were emails from my car insurance company emailing me about an accident that had been reported. I was like "what?".

My dad is paying the deductible for the damage he caused. It was totally his fault. He also feels bad because I haven't been able to drive the car and he went and damaged it. We get it back today in a couple of hours, and as soon as my eye doctor sends my physiatrist a letter about my eyes. I should be getting my hand controls and driving lessons in the hand controls soon. I'll be able to finally drive the thing. I. Can't. Wait.

Three cheers for Erin driving her car!

I don't have it yet.

Nervous about it.

I'm annoyed with all the health professionals right now. Losing all my doctors, and now the PT place is moving. They just told me today. At the end of the month. To a place six miles from my house. In an area that I really do not like to drive. It's on a highway. I hate driving on the highway. Like I have a phobia of it.

I give up. I haven't been able to keep up on the PT anyways. I'll be doing it steady for a couple of weeks, and then something happens, and I end up having a week or more between visits. I've been feeling myself going downhill during those times. So, screw it. I give up. I only get 45 PT appointments anyways with my crappy new insurance. Think I've used half. The world is trying to keep me from getting anything done for myself. I'll probably end up not getting hand controls in the car, since I have to get the ok from my eye doctor. I'm totally expecting something to happen to screw that up.

Erin ,

While sometimes it does seem like all we have in front of us are walls, focusing on them is not helpful. Nor is giving up, or blaming the world for our perception of those walls. Truth be told, the "world" has no fixed opinion on your personal life, or mine, or on anyone else's.

We must advocate for ourselves as much as possible and we must also be patient as our world unfolds before us. A little direction, even if it is to say to ourselves "I prefer that option over this other one", can help things to move along in the direction that we prefer, and that empowers us to move forward no matter the circumstance that we find our selves in.

While it is open for debate whether holding a particular focus influences outcomes, what we focus upon, appears to our consciousness more readily than what we do not.
For example, many people have found that when they are in a particular situation, that others who are in similar ones, seem to become more visible or more numerous in their world. Just ask anyone who has found out that they are pregnant...all of a sudden, there seems to be more pregnant women around them.
It seems to work the other way too. When we have a particular stress...like a smashed up vehicle, it seems that we see the other vehicles that have dents on them, or meet people who are dealing with insurance and car repair issues.

You might consider that there may actually be a synchronicity in the things that are taking place right now in your life that eventually can get you what you desire.
For instance, it might help if you inform your eye doctor that you will need to be able to drive your car to get to your PT clinic which is moving; and that you want him/her to facilitate the adaptation of it with hand controls.
Most people do want to help others, and will, if they know how they can specifically do that. We can certainly let them know. What have you got to loose in doing so?

I wish that you receive all that you desire, but also hope that you find an inner strength to focus on that, rather than on what may seem like obstacles to obtaining them.

With love, Erika

Nicely said Erika.

Sometimes I think that for some, there is something to be lost.
I held on to a mis-taken thought and self-sabotaged.
Luckily that is all behind me now!

If the loss is greater than the gain, there goes the incentive.

Thank you for your kind and wise words on this forum.

Officially ran out of a Amprya today, I've been taking the free trial for 2 months now. It has given me back so much and I feel it slowly leaking away.

I started over 3 weeks ago trying to turn this into a prescription. The 1st week I held back and let them do their thing. The 2nd week I started calling every other day. By week 3 I called every single day and pushed and facilitated all parties getting what they need including sending the signed med docs myself.

Finally got all the ducks in a row on Monday, time to send to the specialty pharmacy. I waited until today, pharmacy has no prescription. Set up an account with them and called Amprya to ask why?

Talked to the same gal who finally got everything together on Monday, she was baffled, no idea why my case manager hadn't sent everything to the pharmacy. So she did, put me on hold, made all the final calls and got everything faxed to the pharmacy marked urgent.

Now I am patiently waiting until after lunch to call the pharmacy back. Meanwhile, hour by hour I feel myself worsening and slowing down. I am so crushed right now that all my progress is being erased as I type this. The hope, the good piece to this is that I have confirmation that the drug is really working for me and doing what it's suppose to.

ker0pi,

Hope you can get your med soon. I've been on Ampyra for 7 months. I really could tell the difference at first. I still can now but back problems are causing walking to be worse. I can even tell if I'm late for my next dose. The leg spasms have almost disappeared and the heaviness isn't as heavy, if that makes sense.