Kitty, I wore dark glasses and a hat with a broad brim to go to the grocery store during those years before diagnosis. This enabled me to go to the store. Otherwise I would be dizzy and have to leave. It's something to consider. I don't have to do this now, as my eye-dizzy problem improved remarkably after dx. Did the Swank diet help? It was the only major change I made after dx, as I already knew the MS drugs were probably not usable by my metabolism (based on previous drug reactions). I don't even think about going in the store now, even though my eyes are older and not as sharp.

Sorry Sally! If it makes you feel any better tomorrow will be rainy and cool and the rest of the week calls for high's in the 50's and a chance of rain every day.

I have had enough of this winter, and on the news last night they said the next three months are going to be much colder than normal. I just feel like screaming. My legs just seem to be getting stiffer and stiffer. They feel like they could just snap in two sometimes. I rarely need to use my cane at home, but I have needed it for the past few days.

I can feel my thumbs!

Still having problems walking. No idea if that's an MS thing or a low B12 thing. I'm leaning towards it being an MS thing that's been magnified by the low B12. I don't think the B12 is going to help that much, but it seems to be helping the tiniest bit in the altered sensations. (I read that one of the symptoms of B12 deficiency is altered/numb sensations in the hands and feet. Imagine my surprise when the sensations changed in my hands this week)

I don't feel good today. Kind of wondering if I've thrown off my other vitamin levels with the taking of the B12. But, I did start feeling better earlier this week after I started taking the B12. Before I started taking the B12, I felt so bad that I felt almost like I was dying. That feeling was what actually sent me to the doctor to get my blood checked out. The sick feeling today, kind of feels more like I ate something that didn't agree with me, than the feeling that sent me to the doctor.

Kind of feeling a little vindicated in my thoughts about the B12 from a few years ago. I'd had my B12 checked in something like 2008 or 2009. It was 345 then, but I was told it was "normal", and not to worry about it. Now that I've started to take the supplements, and I'm noticing improvement in a couple of MS symptoms, I want to go find the doctor that told me not to worry about that level of B12 and smack him with my hands that I can sort of feel with again. Because I do think that the B12 is helping the numb feelings.

So, it's still altered sensation in my hands, it just feels not as altered...

Happy that the B12 is helping you Erin.

If you want to take a low-dose B Complex supplement, a good one is Source Naturals B Complex. I like it because it does not have the too high B6 which some B complexes have. A doctor told me yeas ago to avoid the high dose B6 pills because they could have an adverse affect on nerves. The Source Naturals B6 is only 10 mg. I usually take Megafoods Multivitamins Without Iron, which has only 8 mg of B6. Megafoods is made from food and is mostly low dose.

Well, the improvement in my hands seems to have stopped. I can feel my thumbs and index fingers slightly better than before, but it hasn't improved much for the past few days.

And my walking has gotten a lot worse. Bad enough that I'm going back to the regular doctor in a few hours for more blood tests to check some other stuff. And to talk about steroids.

My neuro had told me last week to talk to the regular doctor about getting IV steroids. I don't like IVSM, so I kind of put it off in the hopes that upping the b12 would help. (I didn't really expect it to). So I'm going to talk to him about it today. Not sure if I'll actually do it.

I'm not feeling all that great again. Exhausted and lots and lots of fatigue. The fatigue has been worse than it was. It's making me feel pretty bad too. It's the feeling sick that's really bothering me. I don't know why I feel sick. I actually slept 8hrs the past couple of nights, but it hasn't seemed to help the feeling sick, and the seriously bad fatigue.

Whatever is going on with the fatigue and feeling sick is affecting my appetite. I will feel hungry, but at the same time, I might not want to eat because I feel sick. (Kind of a nauseous feeling).

Erin, I am sorry that you do not seem to be improving. I hope your primary MD will have some good suggestions.

I want you to be able to drive your car.
ANN

Yes, rooting for you, Erin, to be able to drive your car!

I went to the doctor today.

He didn't draw blood this time. Said he wanted to wait til next week for some reason. Think he wants to see if I can get the b12 up in my system a little more. I told him that the neuro wanted to check some stuff. Couldn't exactly remember what he said tho. (brain foggy)

I told him that the neuro had wanted me to talk to him about getting some IVSM. He didn't really want to do that. (he's got a lot of experience with MS, his dad AND his maternal grandmother both have/had MS) He gave me a Rx of oral steroids. It's just for the week. Doesn't look like it's a long Rx. There's only 30 pills in the bottle. (it's 4 pills x 3days, then 3 x 3days, then 2 x 3 days, then 1 x 3 days) He wanted me to start it this afternoon, but we didn't get the Rx from the pharmacy till almost 7pm. So, I'm waiting till morning to start them.

Kind of glad that it's just a $5 bottle of prednisone. I really don't have the money to go to an infusion center and get hooked up. Plus getting a full blast dose of IVSM does not sound like the thing to do when we're doing a remodel in my house. Especially since my bedroom will be one of the rooms getting remodeled.

What's irritating me right now is my right leg keeps doing a twitch. That's driving me nuts! Seems to be only doing it when I'm sitting. But, I sit a lot. Argh!

I still don't feel good. Also, there's been a potty issue that's had me wondering what is going on. (going on as in not going) but I think I figured out that potty issue. I haven't been eating all that much. Since not much is going in, not much will be coming out. So I kind of feel better about that now that I've made that connection. My dad told me, that I usually only eat half of what I'm served. If that. I didn't think I was eating that little. But, I think he's right. I also really only eat once a day lately. So this might explain a few things. (the weight loss, the not feeling good, the feeling weak, the potty issue)

At least I'm drinking water/fluids.

I'm just so tired. I don't want to do anything. My boyfriend might be coming over tomorrow. (said he was going to last week) I don't think we're going to the movies. Probably just go get something to eat with my parents, and then come back here to watch movies. I just want to talk to someone that isn't my parents. I'm bored.