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Old 02-28-2014, 11:27 PM #18
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Erin524 Erin524 is offline
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Join Date: Dec 2007
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Erin524 Erin524 is offline
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Join Date: Dec 2007
Posts: 5,020
15 yr Member
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still having a lot of issues with the walking. It's been kind of causing me problems with doing things like taking a shower, or going to the store with my parents. Walking around the house. I'm pretty sure this is a new flare.

just called the neuro, and he called me back pretty quickly. He told me to try to get thru the weekend and to call my regular doctor and see if I can get some IV steroids. He did tell me to try to hold off on the steroids if I can. I don't like steroids at all, even if they do sometimes help. Not sure if I'm going to beg for the steroids or not.

He also told me that I should have my regular doctor check me to see if my body even metabolizes b12.

I just looked up to see how many milligrams are in the b12 I'm taking. It's 2500mcg (micrograms?) That's 2.5 milligrams. So, I've upped it. Been reading that 5 milligrams is where a lot of doctors start people on the sublinguals. So, I take one in the morning on an empty stomach, and then another one in the evening, hopefully around an hour or two after eating. Maybe a little longer after eating. (read it's better on an empty stomach). I feel a little bit better. Not feeling as physically sick and weak. Basically just weak. I wonder how long it takes for the b12 to get up to 600 in my bloodstream from the 252 it was.

I think I found a new physiatrist. I don't see him till the middle of March, but when I told the neuro about it just now, he said he knows him and that he's a really good physiatrist. Said he's really nice and is very good at what he does. I hope so. I need a doctor that's nice. My old physiatrist is nice too, but a bit abrupt at times. (old physiatrist was also my mom's physiatrist when she had West Nile. He did good stuff for my mom) Plus he is further away than this new guy will be, so maybe this new guy will work out better for the logistics of just getting in to see the guy.


I'm just so exhausted by everything happening now. Starting to wish I knew what causes MS and could go back in time to somehow stop myself from getting it. (wouldn't that be nice if we could do that?)

hey! I've got a date tomorrow, as long as we don't have a snowpocalypse tonight. yay! Hope I can make it thru the date without falling asleep.
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