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Old 03-13-2014, 11:58 AM #1
Dani93 Dani93 is offline
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Quote:
Originally Posted by Erika View Post
OK...the mood is lifting... but man, for a while there, I was creeping myself out .
Thanks for a place to vent.

With love, Erika
I'm glad that your mood is lifting. <3
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Old 03-13-2014, 01:16 PM #2
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KerOpi, 5-5 at 120 pounds is a beautiful weight. But not enough fat for the injection, it seems.
I am reporting that I am MUCH better after two and a half days on Swank. This ALWAYS happens. But I forget and have to relearn.
I know that others may not get this benefit from the diet. But I mention it just in case there is someone who is like me on the board.
My eyes are better, my exhaustion is less. I slept through without a leg jerk or spasm. I am still anxious and tense and I think it is because the pcp changed my synthroid to 88 mg instead of 100, and the pill has "blue lake dye" in it. I will ask him to go back to 100 mg and skip a dose once every ten days. I am not sure that's it, but it's likely.
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Old 03-13-2014, 05:08 PM #3
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KerOpi - Have you tried manually injecting? I found that on the areas where I didn't have enough fat, going in at a 45 degree angle worked. I also found that I had more site reactions when I used the autoinjector and they would last a good week. It may be worth your while to give it a try.
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Old 03-13-2014, 06:56 PM #4
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When I was taking Copaxone, I got rid of the "auto-inflictor" after about 8 or 9 months and had my dad, a nurse, teach me how to manually inject myself. It was a lot less painful that way. Still hurt, but I didn't feel like I was harpooning myself every night.
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Old 03-16-2014, 09:50 PM #5
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I have three days left of the prednisone taper to go. That's one pill each a day for the next three days.

I felt better on like the second or third day of the taper, it's just as soon as it started to taper off, BOOM! Feeling worse again. It really sucks. I still don't have any energy. I want to take a shower, but I'm half tempted not to because I feel like I'm going to fall down.

still taking the b12, since it didn't seem to have hurt anything, and I didn't feel as physically sick after I started taking the b12.

I'm not that big a fan of taking the prednisone on an extended basis, because of all the funky things the prednisone can do to a person. I'm just feeling bad enough that I'm starting to wonder if a larger taper that lasts a bit longer might break whatever this flare is and allow me to build up some strength. I feel like my legs have been weak for months, and getting weaker.

I can feel where most of the problem is coming from. It's the middle of my low back. Probably around T12 (I know I have a lesion there)

just really really tired of feeling sick all the freaking time. And I can't exactly whine about it to the normal people around me, because that annoys them for some reason.
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Old 03-16-2014, 11:41 PM #6
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Erin do you have a shower chair and hand help shower head.
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Old 03-16-2014, 11:54 PM #7
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yes, I do have a shower chair and a hand held shower head. I still feel like I'm going to fall down when I'm getting in and out, and during the odd time or two that I have to stand up in the shower.

I just feel bad enough lately that I'm starting to think there's something either extremely bad going on with the MS, or there's something else going on.
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