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Old 12-11-2013, 10:11 PM #19
Mariel Mariel is offline
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Join Date: Dec 2006
Posts: 724
15 yr Member
Mariel Mariel is offline
Member
 
Join Date: Dec 2006
Posts: 724
15 yr Member
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Jules--haha!
My medic alert bracelet (sterling silver) just says my name, Porphyria, and "Penicillin OK".
if I were unconscious, and they didn't know I had porphyria, that could subject me to a myriad of harmful drugs. If they wanted to give me an antibiotic, Penicillin would be best, as the others would increase neuro symptoms (spasticity, etc.). They will look up drugs in the Physician's Drug Reference if they are warned about Porphyria.

I have never been unconscious on my many trips to the ER, and I indeed have had to do some big time explanations, but fortunately I could talk at all events. If I could not talk,
the bracelet would help me avoid the worst. But I have never seen an ER tech take a look at it. Maybe because the ER people know me, here, and know my records are local.

So the bracelet would be a much bigger help if I were not in town.

I am glad to report I have not been in the ER for several years. No a-fib, the most likely cause, completely controlled by Propanalol and probably by treatments (phlebotomy) for Polycythemia Vera. The last big ER event was shingles in 2008. I was there for 3 visits, completely unable to walk because the lesions went from hip to toe. No one diagnosed it (maybe lesions were not yet out) until the old ER doc got one look at it. The others asked "why do you have a hot red leg?" And I had to admit I didn't have any idea why I had a hot red leg.
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ANNagain (12-12-2013), Erika (12-11-2013)
 


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