misshayleesmom,

I see that you are from Ontario...much the same nonsense goes on here in B.C. with specialists. There are long waits to get in to see a specialist (sometimes over a year), and then when you finally get in to see them, it can mean more waiting to get tests done, then more waiting to get to see the specialist again to get the results and treatment.

I go between my MS neuro and my PCP, because I often can't see or even speak to the neuro for months.

After I told my PCP "I really need your help, because I can not see my neuro often enough to have continuous care, or get help from him when I need it", he woke right up and became more interested in helping me.
We're trying different medications now to get some symptom relief.

You might try going back to your PCP and telling him something along those lines.

I've said it before, the Canadian medical system isn't all that it is cracked up to be...

With love, Erika

I couldn't agree with you more Erika, I'm giving it a week to see if the Baclofen helps then I will be calling for sure.

Last summer I moved from Barrie Ontario (45 minutes north of Toronto) to back home in Windsor Ontario and the medical care is the same..totally frustrating.. timing sucks!
My son comes home from the military on Friday, he doesn't know I have re-lapsed.. I don't want him to worry since he has finals.. and he needs to do well on them.

I hope I don't have to go the steroid route again but my options are slim.

My calves are screaming... I can barely walk.. they are so tight..

misshayleesmom,

I'm so sorry that you are going through this. Just curious...how much Baclofen are you taking?

With love, Erika

I'm only taking 10mg 2x/day they make me groggy.

For sure they can do that, but I found that after a while of taking it on a regular basis (after around a month), that the grogginess subsided somewhat.

I usually take around 10-20 mg before bed and sometimes that much in the morning as well, especially when I am going through a rough patch.

When my spasticity is really bad, I have taken extra doses to get it under control. I take an extra 20 mg and then add 10 mg every hour or so, up to 60 mg/within a few hours; even though I know that I will be sedated, dizzy and that my body will be weak from taking that much.
It is a trade off at times like that. Less spastic cramping, means less pain, but then the day is shot in regards to doing anything.

How long have you been taking it?

LDN helped to take the edge off of my pain and improved cognition as well as muscle fatigue (Thanks Sally ).

Some people find that some antidepressants also help with pain, so you might ask your PCP about that too.

With love, Erika

Its only been a few days that I've been taking it.

try to keep pushing your drs. sometimes the sqeaky wheel gets the grease.
using your pcp also makes sense to me. your dr knows you and may be more invested in helping you.

bravo to your son. enjoy him.