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Old 12-20-2013, 06:56 PM #1
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Do you have a regular Neurologist? Or a regular PCP?

ER doctor's only see you for a few minutes once.....and usually never again.....so they give the most logical diagnosis that fits whatever you've got going on at that specific moment. So, unfortunately, you never actually get what you really need.

I've had muscle cramping before and even in my hands but never to the point that I couldn't open my fist. What you're describing actually sounds like a seizure. Not sure about the steroids that were prescribed for it.

I'd keep track of how often these "spells" happen and show the next doctor you see so they can have an idea of how often they're occurring.

I hope things settle down for you.
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Old 12-20-2013, 07:19 PM #2
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Ayna-

When they give you a script it is fair to ask- "What are you treating?" How does medrol treat L sided seizures? Did no one want to do an EEG? Or an MRI- I don't remember when your last one was.

If they think it is not seizure activety but "MS," what are they treating? What symptom of MS is it- what is its name?

I am as curious as you are mad. I'd like to see that ER note.

I hope the steroids help- sorry about the moon face.
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Old 12-31-2013, 04:58 PM #3
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I just met my new pcp the other day. She seemed okay. I had an episode after she did the whole strength test thing, so someone in the healthcare world witnessed it happen which is good I guess..

She said she would make a rush appt with the first Neuro she could...

So I won't be seeing anyone until February.

What a flippin joke.

So now I guess I sit here and wait and deteriorate into a pile of crap. Sigh.


I wish so much I could move to Colorado and get the help I need..

There's an ms clinic thing where you stay and they evaluate EVERYTHING and give the therapy needed for each issue.

If these are seizures I am certain they're caused by that big lesion in my parietal lobe.

But I'm not a doctor and know nothing.

I hate this state.
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