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Old 01-07-2014, 08:27 PM #11
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Debbie D Debbie D is offline
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Debbie D Debbie D is offline
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Judy,
My neuro knows i have had severe pain from spasticity. He has worked hard with us to adjust the baclofen so that it's in my system constantly.
And I still have pain pills from post-surgery. But it gives limited relief for some of the pain. The knee really doesn't bother me, except for after the exercises, when I ice it and massage it.
The hamstrings, calves and shins are the problem. I am not sleeping well, which elongates the healing process.
Fibro pain is a unique form of pain and I've always had difficulty when I've had a flare up. I haven't had one in a long time, and it is really uncomfortable.

Finally, last night, I got up after being unable to get the discomfort under control. I got out some cannabis, which I hadn't used since going on warfarin. Within 20 minutes, I was hardly experiencing any pain and slept for several hours. I'd forgotten about it and how well it works for all sorts of spasticity and pain.
It saddens me that so many people think that those who use this are drug abusers…I never used before this darned disease took me by the horns and dragged me around. I still feel guilty, but i will use this rather than narcotics that make me woozy and don't work nearly as well.

Thanks for all the support…I am getting up and down off of chairs and the toilet now without hanging on-a big goal achieved!! My fatigue levels are high now-whenever I do anything, like cleaning up after (finally)putting away holiday decorations, i do just a little cleaning, and I'm wiped. And I'm starting to feel as if i'm going to pass out again when i start to eat meals. So the fun continues. i feel so bad for my wonderful DH-he just retired and now has to be around here for me…but honestly, I'd do the same for him. and he is fine with it...
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Old 01-07-2014, 08:58 PM #12
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PT and self-massage are constant needs for me to have release in the muscles. The harder I push on my knots, the better. I push as hard as I possibly can, and have increased my hand and arm strength by working on my legs. I had the intense massage once, and I loved it!
Shows how different we can be. I do NOT have fibromyalgia. That must be the absolute pits to have with MS.
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