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#1 | |||
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Member
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I started getting twinges on Wed in my rightside ribcage, under bra strap. By Thursday evening, I was starting to 'grunt' when I got the jabs and they were becoming more constant now. By Friday, had to call Dr after trying stretching, heat, ice pack, icyhot cream, massage, gabapentin. The Dr upped my gabapentin to 400mg, 4x day, and prescribed 20mg baclofen 4x day as well. This seems to have 'mellowed' the spasms a little bit. Sat was pretty bad, so I just hung low, reading & napping and today has turned out to be the same.
I am still fighting the hug, as it continues to remind me it is there....I've never had a hug last this long :-( The meds seem to be helping, and I've been making sure to keep up on the timing. Hoping it just stops all together. Just venting to those who 'get it'....:-) Amy |
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#2 | ||
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Senior Member
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Sorry that you are experiencing the HUG...and yes, I get it. Stupid Quasi-moto inducing disease.
With love, Erika |
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"Thanks for this!" says: | DizzyLizzy (01-27-2014), SallyC (01-27-2014) |
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#3 | |||
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In Remembrance
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I haven't had the "HUG" in awhile, but I remember that I hated it..
![]() Hope it goes away soon for you. ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: |
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#4 | |||
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Member
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I'm still dealing with the hug still...I've had to keep up on the baclofen & gabapentin in order to stay ahead of the grunting :-)
Im due for me next infusion on Wednesday, so I'm hoping that will kick me into a better place...I always seem to get a kick start for the week or so afterwards. I'm ready for this to be done...
__________________
Amy DO WHAT makes you happy, Be with WHO makes you smile, Laugh as much as you breathe & LOVE as LONG as you LIVE . July 2006- First significant SXs, suspect it started back in mid 1990's 1/21/09 - Positive MS Dx 2/17/09 - 2nd Positive MS Dx 4/2/09 - MS Dx 3rd Neuro - finally found the Dr. who has the characteristics I was looking for . 10/8/09-optic neuritis flair, Cog Fog, chronic headaches 5/4/09 - 12/15/09 Copaxone 1/15/2010 - First Tysabri Infusion - 3/25/16 - Last Tysabri Infusion 3/3/16 - signed the documents to start the Lemtrada journey 4/25/16. Lemtrada begins. |
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#5 | ||
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Member
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I'm not sure what the hug is. I have had spasms in many parts of my body, but I don't think I feel like someone is crushing my rib cage, if that is it. I have felt a depression of the breathing muscles in the mid-abdomen when I have taken certain drugs, notably Lidocaine, Lyrica, and some of the chemos for Polycythemia Vera. I have had severe sudden spasms in the diaphragm area, but they don't feel like someone is hugging or crushing me. The depression of breathing I think is called bulbar paralysis--not complete paralysis in these cases, as I am still breathing.
The only hug I feel in the area is my bra putting pressure on me. I wish I did not have to wear one. But I am 38 C, without gaining much weight. In my disease Polycythemia Vera, some people get enlarged spleens, but I have not been told I have this. However if I don't wear a bra I feel awful with the sweating under the breasts. So I wear the dang thing. But I don't think this feels like what you have described as the hug. |
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#6 | |||
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Member
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I am still dealing with the jab in my right side, however today has been quite a bit better than any since it started nearly 2 weeks ago! I am feeling hopeful.
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__________________
Amy DO WHAT makes you happy, Be with WHO makes you smile, Laugh as much as you breathe & LOVE as LONG as you LIVE . July 2006- First significant SXs, suspect it started back in mid 1990's 1/21/09 - Positive MS Dx 2/17/09 - 2nd Positive MS Dx 4/2/09 - MS Dx 3rd Neuro - finally found the Dr. who has the characteristics I was looking for . 10/8/09-optic neuritis flair, Cog Fog, chronic headaches 5/4/09 - 12/15/09 Copaxone 1/15/2010 - First Tysabri Infusion - 3/25/16 - Last Tysabri Infusion 3/3/16 - signed the documents to start the Lemtrada journey 4/25/16. Lemtrada begins. |
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