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Hi guys
I posted this on the Tysabri thread, but didn't get any response - so I thought I might copy it to here and see if any of you wonderful people have and any experience with these: -------------------------------------------------------------------------------- And I don't mean the yummy kind that comes after dinner with witty (or tipsy) conversation and nice cheese with crackers. I had infusion # ???? (in my fifth year now) and my veins are going on strike. My beautiful nurses - one of whom has MS, and the other who is a super-gentle and experienced oncology/chemotherapy nurse have suggested I get an implanted venous port put into my chest (just under my collarbone, and fed through a central line to my sub-clavian vein) after three unsuccessful attempts today to cannulate me (finally got it in on my cubital fossa - which I don't like) Not sure how I feel about this - in Australia, they don't test the titre level for JC+ - you are just positive or negative (I am +). If I knew my titre level, I would have a better idea of how long I am prepared to risk Ty. Does anyone else have a port? If so, what was it for, what was your experience, and did it make having infusions/blood tests etc easier? Thanks
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Lyn . Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993. |
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