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Old 01-30-2014, 08:04 PM #1
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Lynn Lynn is offline
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Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
Lynn Lynn is offline
Member
Lynn's Avatar
 
Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
Default Time for a port???

Hi guys

I posted this on the Tysabri thread, but didn't get any response - so I thought I might copy it to here and see if any of you wonderful people have and any experience with these:

--------------------------------------------------------------------------------

And I don't mean the yummy kind that comes after dinner with witty (or tipsy) conversation and nice cheese with crackers.

I had infusion # ???? (in my fifth year now) and my veins are going on strike. My beautiful nurses - one of whom has MS, and the other who is a super-gentle and experienced oncology/chemotherapy nurse have suggested I get an implanted venous port put into my chest (just under my collarbone, and fed through a central line to my sub-clavian vein) after three unsuccessful attempts today to cannulate me (finally got it in on my cubital fossa - which I don't like)

Not sure how I feel about this - in Australia, they don't test the titre level for JC+ - you are just positive or negative (I am +). If I knew my titre level, I would have a better idea of how long I am prepared to risk Ty.

Does anyone else have a port? If so, what was it for, what was your experience, and did it make having infusions/blood tests etc easier?

Thanks
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Lyn
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Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993.
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