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#11 | |||
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Member
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Thank you mrsD for posting that video.... I'm currently taking B Complex vitamins, but I don't know what my levels are? I will be on the 'hunt' now, thumbing thru my records. Thank you for this valuable info!
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Amy DO WHAT makes you happy, Be with WHO makes you smile, Laugh as much as you breathe & LOVE as LONG as you LIVE . July 2006- First significant SXs, suspect it started back in mid 1990's 1/21/09 - Positive MS Dx 2/17/09 - 2nd Positive MS Dx 4/2/09 - MS Dx 3rd Neuro - finally found the Dr. who has the characteristics I was looking for . 10/8/09-optic neuritis flair, Cog Fog, chronic headaches 5/4/09 - 12/15/09 Copaxone 1/15/2010 - First Tysabri Infusion - 3/25/16 - Last Tysabri Infusion 3/3/16 - signed the documents to start the Lemtrada journey 4/25/16. Lemtrada begins. |
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#12 | |||
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Magnate
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My Neurologist says not to count the D3 that is in a multivitamin.
Quote:
It is a good idea to re-check your D level about every 6 months. I have found D3, for me, is difficult to regulate. I started out with my D level @ 16. Started 5000iu and it took about a year and a half to bring my level up to 57.2. It was decided to bring my D3 amount down to 2000iu. Within 4 months my level dropped to 27.2. Upped my D3 to 4000iu and will be getting re-tested within a month.
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Dx RRMS 1984 |
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#13 | ||
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Junior Member
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My family doc had the lpn call with my results so I couldn't really ask any questions. She just said to take 1-2000iu...that's it! No retesting/follow up!?!
So I quick asked the Neuro why D was tested and briefly mentions demylenating diseases. I tried to ask him what the best dose etc, and he says, " your family doctor probably knows what to take". Ughh they didn't seem to concerned! |
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#14 | |||
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Magnate
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The majority of the general population, approximately 85(?) percent, has a vitamin D deficiency. Low vitamin D is being linked to many conditions not just MS.
I figured out pretty quick that even the medical profession isn't sure what the right dosage is. It appears to be trial and error. Even if retesting was not mentioned please have your PCP recheck your D level in about 5 or 6 months
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Dx RRMS 1984 |
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#15 | ||
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Junior Member
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Thank you very much for the vitamin d help!
I have another question if you all don't mind. When you have our MRIs, do you get them all with contrast? My brain MRI is with and without contrast and my cervical and thoracic are just without. Thanks! |
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"Thanks for this!" says: | Erika (02-05-2014) |
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#16 | ||
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Senior Member
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The brain ones are usually done with both for me; spinal sometimes also but not always.
With love, Erika |
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"Thanks for this!" says: | SallyC (02-05-2014) |
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