Home Menu

Site Navigation



NeuroTalk Support Groups > > >

Tecfidera - anyone on it 6 months?

Reply
 
Thread Tools Display Modes
Old 02-27-2014, 08:59 AM #1
Sparky10's Avatar
Sparky10 Sparky10 is offline
Senior Member
  
Join Date: Sep 2006
Location: Iowa
Posts: 1,094
15 yr Member
Sparky10 Sparky10 is offline
Senior Member
Sparky10's Avatar
 
Join Date: Sep 2006
Location: Iowa
Posts: 1,094
15 yr Member
Default
Goldie, I've been on Tec since last June or July. Do I feel better? No, I feel the same. Tec is not for symptom management; it is to prevent or lessen relapses. I'm SP and haven't relapsed since being diagnosed in '00.

I can see how some people would feel better on it. Not relapsing, if relapses were often or intense, must feel wonderful! Hope you find something to help you feel better!
__________________
RRMS, diagnosed '00

Everything will be alright in the end. If it's not alright, it's not yet the end.
Sparky10 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (02-27-2014), Erika (02-27-2014), ewizabeth (02-28-2014), Kitty (02-27-2014), My3sons (03-01-2014), SallyC (02-27-2014)
Old 02-27-2014, 09:56 AM #2
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
  
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default
My Neuro wants me to begin taking Tec. I'm in the midst of a pretty big flare up right now and have to go for an MRI next Tuesday. He will determine if IVSM is needed once he reads the MRI.

I've started the patient assistance process for Tec so I hope that goes smoothly. I'm a little apprehensive about the possibility of side effects but the vision and balance issues I'm having with this current flare have convinced me that I need to be on something.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (02-27-2014), barb02 (02-27-2014), Erika (02-27-2014), ewizabeth (02-28-2014), My3sons (03-01-2014), SallyC (02-27-2014)
Old 03-02-2014, 10:00 AM #3
Sparky10's Avatar
Sparky10 Sparky10 is offline
Senior Member
  
Join Date: Sep 2006
Location: Iowa
Posts: 1,094
15 yr Member
Sparky10 Sparky10 is offline
Senior Member
Sparky10's Avatar
 
Join Date: Sep 2006
Location: Iowa
Posts: 1,094
15 yr Member
Default
KittyLady, if you are working with MSActiveSource, be sure to ask specifically for the financial assistance program to see if you qualify. I've never paid for mine but financial assistance was not offered - I had to seek it.

Good luck to all - hope Tecfidera helps!
__________________
RRMS, diagnosed '00

Everything will be alright in the end. If it's not alright, it's not yet the end.
Sparky10 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (03-02-2014)
Old 03-02-2014, 10:21 AM #4
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
  
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default
Quote:
Originally Posted by Sparky10 View Post
KittyLady, if you are working with MSActiveSource, be sure to ask specifically for the financial assistance program to see if you qualify. I've never paid for mine but financial assistance was not offered - I had to seek it.

Good luck to all - hope Tecfidera helps!
They called me on Friday to verify info but didn't think to mention the financial assistance. She woke me up so I wasn't as clear-headed as I would have been. My Neuro said something about having to try to get it with insurance and then applying for financial assistance so I'm not sure what's next.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (03-02-2014), SallyC (03-02-2014)
Old 03-02-2014, 07:07 PM #5
JoanB's Avatar
JoanB JoanB is offline
Member
  
Join Date: Sep 2009
Location: Pittsburgh
Posts: 739
15 yr Member
JoanB JoanB is offline
Member
JoanB's Avatar
 
Join Date: Sep 2009
Location: Pittsburgh
Posts: 739
15 yr Member
Default Why is it so expensive?
I've only been on Tec for two weeks, so can't answer the initial question, but I have United Healthcare, and it went through with no delay. I have a $75/month copay, which isn't too bad for me if this med helps, but might be if you're on a fixed income. Why is this drug so expensive in the first place? Wasn't it used in Europe for many years for psoriasis? Didn't they just take an old-ish drug and just rename & repurpose it?
JoanB is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (03-03-2014), SallyC (03-02-2014)
Reply

« Previous Thread | Next Thread »
Thread Tools
Display Modes
Hybrid Mode Hybrid Mode

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Day 25 of Tecfidera karilann Multiple Sclerosis 10 11-03-2013 06:25 PM
Tecfidera Tracey Groves New Member Introductions 3 11-03-2013 05:12 PM
Tecfidera questions.. KittyLady Multiple Sclerosis 17 10-27-2013 07:53 PM
Tecfidera & PML ??? john hartfiel New Member Introductions 1 05-15-2013 12:40 AM
BG-12-Tecfidera-Biogen kicker Multiple Sclerosis 19 03-30-2013 10:26 AM


All times are GMT -5. The time now is 02:08 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home