Yes, Ive had tongue numbness and yes, do tell your Doc. The more he knows,
the more s/he may help you.

Let us know how it goes.

I posted just today about upper lip paralysis (brief duration) and that included possible tongue impairment, not total paralysis. Maybe similar? There are so many different nerve pathways.

Well I had my appt with the neuro yesterday.

He stated that I have a Chiari malformation type I. He did not see any lesions in my MRIs so negative for MS. I had read a little about chiari before my appt. basically they can cause a lot of similar symptoms like MS does. I was a little disappointed that the doctor did not really explain a lot to me. He basically said there is no treatment except surgery ( which I would highly avoid brain surgery!). He said this causes my numbness and balance issues....just stinks I basically cannot do anything for it;( I am to go back in 6 months.

I'm thinking I getting a second opinion. Just to see if another Doctor can educate me better. My neuro never mentioned any restrictions and I feel he just rushed through my appt. its very scary sitting there by yourself hearing someone tell you you have a brain malformation. I left there a little in shock. Just not sure where to go with all of this?

Does anyone here know of anyone with a chiari? Thank you all so much for your help and time

So sorry Mimi for your DX of Chari malformation. I have read about it and
knew of a few people with it. I also knew that there is an operation to
correct it. Any brain surgery is risky, of course.

If there was an operation to correct MS and I was younger, I think I'd jump
on it. However, the operation better have a 95% chance of being successful.

I think a 2nd opinion is a good idea. Your Neuro sounds like a loser.

Feel better..