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Old 04-19-2014, 10:01 PM #1
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Quote:
Originally Posted by Lynn View Post
It's weird when it happens this bad - as if I don't have enough trouble with numb fingers already

I usually shake my hands a lot and run them under warm water and it comes back to normal - a nasty feeling though. I have never shown this to a doctor, perhaps I should - I doubt it would make any difference.
I'd still mention it to your doctor, just so they're aware.

They do have medications that you can take if it gets to be too much - for now, I'll deal with the kaleidoscope of colours I get with mine. Thank you for sharing the photo Lynn, that's a great photo (not great that you have the condition, but a fantastic example of it).

I wanted to post a photo of my feet from the pictures I took, but I will have to come back later with one, I seem to have "misplaced" them on my computer somewhere. ... we all know how that goes. lol.

Plus, I'm not entirely sure how to post a picture without a URL, but I'll figure it out.
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 04-20-2014, 12:03 AM #2
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Okay, I think I got them figured out. The first 2 are the same foot, you can see the progression of the white areas returning to 'normal' skin colour.

The 3rd was the other foot, which was harder for me to get a photo of for whatever reason, the markings on it were quite unique looking.
Attached Images
File Type: jpg Raynaud's1.jpg (81.0 KB, 87 views)
File Type: jpg Raynaud's2.jpg (84.8 KB, 77 views)
File Type: jpg Raynaud's3.jpg (98.3 KB, 76 views)
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 04-20-2014, 01:54 AM #3
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Wow - my feet go like that too - well similar anyhow. No fun at all!
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Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993.
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Old 04-20-2014, 02:01 AM #4
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Quote:
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Wow - my feet go like that too - well similar anyhow. No fun at all!
No, not fun, especially when the blood flow starts to get back into those areas. Oh the ache.

My friend recommended these slippers she swears by (she has fibromyalgia and is constantly cold). They're down-filled and so light, as light as socks. They don't make my feet feel as though they're sweating, but when I take them off my feet are toasty warm.

Great investment for sure, as I understand with Raynaud's, keeping extremities warm is a big part of dealing with episodes. Now, to find something similar for my hands.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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