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Old 04-13-2014, 09:22 AM #4
LillyMS LillyMS is offline
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Join Date: Mar 2014
Posts: 40
10 yr Member
LillyMS LillyMS is offline
Junior Member
 
Join Date: Mar 2014
Posts: 40
10 yr Member
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Thanks for the replies.

I don't know, this is just freaking me out to be honest, because I have been 100% asymptomatic for the past 7 yrs (totally unaffected by MS, NEVER have fatigue & workout like a horse etc) and now suddenly I had slight tremor in my right hand last week (only if held in strange position) along with the right side of my smile on my face cramping up (getting stuck for approx 30 minutes) sometimes when I smile too hard. I look REALLY strange when that happens because the right side of my mouth is literally STUCK in a smiling position.. cramped up.

This to me this feels like a definite sign my MS is progressing. However, my MRI has been stable - showed NO new lesions past 2 yrs. In fact, they said some lesions have "diminished".

... so if my MS was progressing... wouldn't it reflect that in the MRI? Problem is that my last MRI was done without contrast so I HOPE it didn't miss anything!

Am I totally CRAZY insane to have stopped taking tecfidera very recently? Am I stupid? I know my neuro would think so! I had to switch neuros since my previous one REFUSED to prescribe LDN to anyone. I ended up going to a GP or whatnot to get prescription. Tecidera severely lowered my WBC (elevated both my kidney and liver!) and I am VERY concerned about tecfidera's toxicity and cancer risk. This is why I am moving to LDN since it is not toxic... I just really HOPE it works.

Are you guys ONLY taking LDN? Thanks
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Mariel (04-18-2014)
 


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