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Old 04-14-2014, 11:30 AM #11
LillyMS LillyMS is offline
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Join Date: Mar 2014
Posts: 40
10 yr Member
LillyMS LillyMS is offline
Junior Member
 
Join Date: Mar 2014
Posts: 40
10 yr Member
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I know I have to relax and stop googling myself into insanity. It is just shocking to me how I went from one tiny little lesion to well over a dozen within just 6 yrs time. My MS has progressed severely is what every neuro I have seem thus far keep telling me (I've even seen the top neuro at johns hopkins in baltimore and the neuro who "trained" with him in Miami).

I am SUPER thankful I am doing so well and able to be active as if I were normal without this *** disease. It did attack my legs once and I was unable to run for 3 weeks (even affected my walking), it sucked!! I know many others aren't so lucky to resume as normal, I can't help but feel doomed... like "it's only a matter of time". When I was on tybsabri, the infusion room was more than depressing. I have never seen so many people in wheel chairs before and they all had MS. Difficult to stay optimistic!

You guys should checkout the "foodbabe". I think that girl is fantastic. It is incredible how much she's made a difference. Big hats off to her

PS: I agree that MS drugs are indeed a crapshoot.

Last edited by LillyMS; 04-14-2014 at 11:52 AM.
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Erika (04-14-2014)
 


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