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Old 04-12-2014, 03:33 PM #1
LillyMS LillyMS is offline
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Join Date: Mar 2014
Posts: 40
10 yr Member
LillyMS LillyMS is offline
Junior Member
 
Join Date: Mar 2014
Posts: 40
10 yr Member
Question Is this REALLY true?

I have relapsing remitting MS and keep reading that MOST people with relapsing remitting MS develop secondary progressive MS.

I am not too happy about this and hoping it's not so??? I've gone off all MS drugs (just stopped very recently with tysabri, tecfidera) and am trying out LDN as MS drugs are too toxic and I don't want to end up with cancer!

I'm completely unaffected by MS past 7 years, I jog every day, never have fatigue and don't even feel like I have MS.... I feel GREAT!!... but have LOTS of lesions... MRI has been stable past 2 yrs though. But I do have 2 very minor new symptoms that started this past year (right side of my face get's "stuck" cramps up when laughing too hard and slight tremor in my hand sometimes. Therefore, it is clear to me this bloody disease is progressing even though the stupid MRI doesn't show new lesions.

This is why I get so aggravated when neuros claim MS drugs are working.... it clearly wasn't working... I have new symptoms I've NEVER had before... which means it is progressing IMO.
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